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I have heard in the past from several friends who have tried many others including surgery, implants or non-medication alternative methods. However, I think it would help if those of you who have to share your experience with those are now at the point where they have been told that medication will never allow them to reach a long-term seizure free state.
If Q + A section was better organized, then I would not have to ask this question, but we have a support site, so we have to do what we can… read more
@A MyEpilepsyTeam Member Everyone gets nervous. Usually what helps is if you talk to your epileptologist/surgeon. From the surgeon, I learned there was a better chance of dying from a car accident… read more
Favorite:
Sleeping or watching tv
Least favorite:
1. Lack of sleep
2. Strobe lights
3. Blowing on a windmill
My least favorite part of an EEG was having the electrodes implanted directly into my scalp. Then I was told to relax!
No need to apologize. Tell your neurologist's about the depression side effect of that medication
As someone who was once labeled as not likely to ever reach a long-term seizure free state (and have… read more
if anyone is free to chat i am here
I’ve had epilepsy since the age of 2. I’m now close to 50 yrs. Of age
I have always only had between 2-4 min seizures all my life but since July 1, 2022 they started lasted 20min. What could be causing that spike in the differences? I am really concerned but more concerned about having a seizure like that in public with my 4year old son with and no one else.
Hi Amanda. I can totally relate. My seizures have gone from Focal seizures that happened a 2-4 times a week to What seems to be Nocturnal Tonic Clonic. My Keppra has been increased to 3000 mgs. a day… read more
Since having epilepsy I've only seen a few people have a sezure on TV i watch some body yesterday on TV have a sezure I thought it was upsetting to the point I cry I wouldn't like to see myself shocking what we go through and our body's bless everyone ❣️ and stay positive strong and never ashamed let s all hope for a better 2023
I just want to be seizures free for the rest of my life 😪
Since I started taking Vimpat my memory has gotten worse. It seems to have gotten worse as my dose has increased. Has anyone else had this problem? Vimpat has also raised my blood pressure
Ask your doc if vimpat messes up your memory. Our epilepsy is not remembering things. My friend who does not even have epilepsy tells me the older we get she even cannot remember stuff.
I've noticed we are some intelligent. Spiritual, artistic and poetic people on here can you all show me some stuff. I'm just in awe of us as a disabled people. I truly am shine peeps shine
Mantle
Love your description w/ math!
Does anyone in the Jacksonville area see Dr. Chabolla? I’ve been waiting for my appt for 2 and 1/2 months and my appt is finally on Friday. I just started having seizures in august, so this is still pretty new. Just wondering if anyone knows him?