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What Treatment For Epilepsy? I've Been On 6 Different Meds.
A MyEpilepsyTeam Member asked a question 💭

Every couple of years I have seizures then my Dr wants to try something new or ups the dosage. The meds I'm on now are making me dizzy and off balance

A MyEpilepsyTeam Member

I have been on too many meds to count. I was on phenobarbital, volume, Dilantin, Depakote, Topamax, and vimpat just to name a few. My son is on Trileptal, Keppra, Onfi, Depakote (two, 250 mg, and… read more

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Has Anyone's Neroligest Tol You That Low Potassium Was The Cause Of A Grand Maul?
A MyEpilepsyTeam Member asked a question 💭

My potassium was below a 3 when I 2 back to back. I'm now on 10 Meq's which is 8 pills a day.

A MyEpilepsyTeam Member

I asked a similar question I have had low potassium after seizures. And even prescriptions now given to me.

Has Anyone Found A Successful Treatment For Catamenial Epilepsy?
A MyEpilepsyTeam Member asked a question 💭

I was prescribed Depokote 20 years ago but discontinued shortly after due to side effects and it did not control the hormone triggers. I have had auras for the past 20 years but I have now had 2 grand mal seizures in the last 8 months.

A MyEpilepsyTeam Member

The birth control pill is great for any type of hormone discrepancy. Helps by keeping them sll level so no rise and fall monthly. If you already have say a high estrogen level the sudden increase… read more

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Was Wondering How Long It Takes Some People To Get Their Memory Back After A Seizure?
A MyEpilepsyTeam Member asked a question 💭

I sometimes find it takes a few days for my memory and concentration to get back to normal.

A MyEpilepsyTeam Member

I figure everyseizure is 3 ,4 days blanked out of my memory.in over55 years a ot of lost time.Onetime went to florida by car from massachusetts with some friends.Was entering florida had agrand mal.to… read more

Pill Reminder
A MyEpilepsyTeam Member asked a question 💭

What do you do to remember to take meds when you take more than once a day!

A MyEpilepsyTeam Member

I use Medisafe app to let Me know when it’s time

How High Is Your Dose Of Lamotrigine?
A MyEpilepsyTeam Member asked a question 💭

Mine is 300mg bid
Only 2 grand mals since 2015 and monthly absence seizures

A MyEpilepsyTeam Member

I take 250mg morning and evening. This has increased slowly over 8 years.

Does Anyone Have Their Seizure(s) On A Specific Day Of The Week?
A MyEpilepsyTeam Member asked a question 💭
A MyEpilepsyTeam Member

i just had surgery so I'm hoping i have no more and i only had 1 verified one since surgery (and 2 unverified ones) but before surgery i would have premenstrual ones. ones in my sleep, usually early… read more

Does Anyone Use The Watches That Help Detect Seizures? Are There Certain Things You Need To Take It Off To Do So It Doesn't Set Off.
A MyEpilepsyTeam Member asked a question 💭

Will it set off with excessive motion.

A MyEpilepsyTeam Member

I have heard of this but I am afraid to shell out the money only ro have it not work. I'm waiting for it to be out a little longer so I can hear how well it works. If it works well, I would be more… read more

Missed Dose
A MyEpilepsyTeam Member asked a question 💭

Hello
My 9 year old missed his levetiracetam this morning. We did not realize it until noon. He takes his medicine twice a day. Every 12 hours. We try to take it every time at the same time. His doses are 8:30 am and 8:30 pm. We have this set due to school and bed time. My question is: Is it safe to skip one dose. My son only had 2 full convulsion seizures. He also has night seizures/terrors when sleeping. His doctor wants to start winging him off his medication after we view his next EEG and… read more

A MyEpilepsyTeam Member

Thank you everyone for your reply. So far he’s fine. No affects from 1 mission dose. We have timers and alarms on every phone and device to remind us. We were distracted at that time. I hope it never… read more

Vns Therapy
A MyEpilepsyTeam Member asked a question 💭

i want to know as much as possiable about it they r talking about doin this on my daughter

A MyEpilepsyTeam Member

I have a VNS also, I am not very organized so I don’t know where my 🧲 magnets have gone. The battery 🪫 in my VNS is dead 💀 right now. My neurologist recently told me there is a new and improved one… read more