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What Treatment For Epilepsy? I've Been On 6 Different Meds.
A MyEpilepsyTeam Member asked a question 💭

Every couple of years I have seizures then my Dr wants to try something new or ups the dosage. The meds I'm on now are making me dizzy and off balance

A MyEpilepsyTeam Member

I have been on too many meds to count. I was on phenobarbital, volume, Dilantin, Depakote, Topamax, and vimpat just to name a few. My son is on Trileptal, Keppra, Onfi, Depakote (two, 250 mg, and… read more

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Does Anyone Use The Watches That Help Detect Seizures? Are There Certain Things You Need To Take It Off To Do So It Doesn't Set Off.
A MyEpilepsyTeam Member asked a question 💭

Will it set off with excessive motion.

A MyEpilepsyTeam Member

I have heard of this but I am afraid to shell out the money only ro have it not work. I'm waiting for it to be out a little longer so I can hear how well it works. If it works well, I would be more… read more

For Those Who Have Grand Mal Seizures I'm On Keppra Does Missing One Dose Make You Have A Seizure
A MyEpilepsyTeam Member asked a question 💭
A MyEpilepsyTeam Member

Missing 1 no but if you keep missing your medication it will cause sezure I look at it medication good sleep water and less stress 😬 you have to put your self first

Learn About Cannabidiol And The Health Benefits!
A MyEpilepsyTeam Member asked a question 💭

Come to this free webinar on Facebook
Sunday - May 7, 2017 From 3-4PM MST

https://www.facebook.com/events/1098086103626815/

A MyEpilepsyTeam Member

thanks

Has Anyone Heard Of Pseudo Seizures?
A MyEpilepsyTeam Member asked a question 💭

I was told I have Grand Mal and other Seizure Disorders one of them called Pseudoseizures . Anyone else ever hear of this? I'm told it's hard to diagnose and often gone undiagnosed or is missed. My family and I was just grasping the Grand Mal Seizures now there's more to try and sort thru?

A MyEpilepsyTeam Member

I agree especially with MarKC - thanks for reminding me of ' non epileptic seizures' I've also heard of them being called ' pseudoseizures' too

Has Anyone Had The RNS SURGERY, Please Provide Me With Any Feedback.
A MyEpilepsyTeam Member asked a question 💭
A MyEpilepsyTeam Member

Mine was like sean. I did a 14 day stay eeg one surgery , stitches. They monitored me for about 2 months then we started making adjustments. My battery change was a day surgery a lot smaller cut than… read more

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What Is The Legal Route To Go When A Person With Epilepsy Has Been Scammed At A Emergency Room At A Hospital?
A MyEpilepsyTeam Member asked a question 💭

About 5 months ago my 2 friends took me to a emergency room at a local hospital. I had a falling seizure a day and half before and I had the symptoms of a concussion. My friends and I wanted to find out if I did have a concussion for sure. Disappointing experience we all had. Didn't find out anything about a concussion. A month and a half later I got 3 bills totalling right under 5 thousand dollars. Got my medical records for that day, for I could get anyway. It was full of lies, with… read more

A MyEpilepsyTeam Member

Unfortunately, you have to let them know you are taking them to court, and if this does not inspire them to listen and fix the records, then take them to court.

Question
A MyEpilepsyTeam Member asked a question 💭

My neurologist wants to put me on EPIDIOLEX. Does anybody have any experience with this medication. I would love to hear your reviews and experiences. Good or bad.

A MyEpilepsyTeam Member

@Churcham. I can tell you from professional experience (14 years doing interlibrary loan work for Massachusetts General Hospital--and getting at least article, chapter, book, etc. request filled for… read more

Liquid Medications And Clean Dry Oral Syringes
A MyEpilepsyTeam Member asked a question 💭

They plan on moving me to an Assisted Living Facility. I am deeply concerned about keeping the Oral Syringes clean and dry. I do a wonderful job, and the Nurse who visits agrees.

Does anyone know how this is dealt with in these places?

Leslie

A MyEpilepsyTeam Member

Sue
Because they think I need a nurse all the time I would not qualify. However, I ended up ordering 30 extra new ones. It was15, but they come in packages of 2. I also gave the Doctor the… read more

Epilepsy Diagnosis
A MyEpilepsyTeam Member asked a question 💭

When did you get it?

1950s

1960s

1970s

1980s

1990s

2000s

Last of 101 replies sign up to view previous answers
A MyEpilepsyTeam Member

Diagnosed 1992 I think winter. Oh wait nope summer.