Every couple of years I have seizures then my Dr wants to try something new or ups the dosage. The meds I'm on now are making me dizzy and off balance
As Bryan explains, if you listen to his pod cast, there are a lot of reasons (unfortunately the most frequent is unknown) of why an individual of any age develops Epilepsy.
Not to mention, even if… read more
My 9 year old missed his levetiracetam this morning. We did not realize it until noon. He takes his medicine twice a day. Every 12 hours. We try to take it every time at the same time. His doses are 8:30 am and 8:30 pm. We have this set due to school and bed time. My question is: Is it safe to skip one dose. My son only had 2 full convulsion seizures. He also has night seizures/terrors when sleeping. His doctor wants to start winging him off his medication after we view his next EEG and… read more
Thank you everyone for your reply. So far he’s fine. No affects from 1 mission dose. We have timers and alarms on every phone and device to remind us. We were distracted at that time. I hope it never… read more
Will it set off with excessive motion.
I have heard of this but I am afraid to shell out the money only ro have it not work. I'm waiting for it to be out a little longer so I can hear how well it works. If it works well, I would be more… read more
Hello! I could not find any answers to this topic. Do you all find that you generally need more sleep than others? I know everyone is different, but I find that I usually need 8+hours of sleep daily. I am very diligent about getting enough sleep as that is one of my main triggers. On the weekends, I can easily sleep for 9+ hours. Is anyone else like this?
I would say yes, I’m the same way in that I need about 8 hours on a regular schedule in order to function normally, and without it I’ve been more prone to seizures. But I purposely plan and keep to… read more
Lack of sleep is a Trigger, so I go to sleep after 9 AM.
They somehow were under the impression I would need a Nurse with me at all times. I did not move there because they do not provide that level of care. My Conservator will continue working on it… read more
What do you do to remember to take meds when you take more than once a day!
The only thing that I haven't had to deal with until maybe mid 2000's I found out I have type 2 diabetes. That and the medication made me get dehydrated quite often. I have always had dealt with stress and Sleep deprived because I was hyperactive and insomnia. So I don't think that did it. But aa the years went by and added medication for diabetes I became more prone to dehydration. I couldn't drink enough water to stay hydrated. The day I had my last seizure after all them years I was so… read more
So far I can drive if I want to even on a medication. I just don't have a car lol. So it's public transit for me and my husband.
Can those who have had good results with either lamictal or/or trileptal please comment on your experiences with? thanks :)
I was told I have Grand Mal and other Seizure Disorders one of them called Pseudoseizures . Anyone else ever hear of this? I'm told it's hard to diagnose and often gone undiagnosed or is missed. My family and I was just grasping the Grand Mal Seizures now there's more to try and sort thru?
I agree especially with MarKC - thanks for reminding me of ' non epileptic seizures' I've also heard of them being called ' pseudoseizures' too