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Has anyone had homeopathic treatment? I was given calcarea carbonica and I'm wondering if that has what has made my epilepsy worse. I'm going to see the homeopath again soon. Just wanted to know other peoples experiences and things which may have helped them
@A MyEpilepsyTeam Member thank you 😊
Afraid to let woman know about my different medical issues and she wouldn't want to be with me
Just be honest with her but don’t tell her all the details at once. Be open with her and let her know that you will always be there for her and if she can’t handle what you can’t control (epilepsy and… read more
I am 100% positive that hormones are playing a huge factor in both the frequency and intensity of my seizures but I’m not sure where to start to address it. If anyone has any suggestions, PLEASE let me know!
I started with seizures just as I was coming out of menopause at 54. I’m going to be 64 in June. All of my family and friends as well as myself think my epilepsy was brought on by a hormonal change. I… read more
Every couple of years I have seizures then my Dr wants to try something new or ups the dosage. The meds I'm on now are making me dizzy and off balance
Does anyone know if 200mg 2x day is a high dose? I mean I could ask my neurologist. Just curious.
I take 1 200 in morning 2 at night and mind are brand name and never had problem but came sz free goning on 25 yrs as also take Tegretol 400mg 1 in morning 1 at night same time brand name
When did you get it?
1950s
1960s
1970s
1980s
1990s
2000s
Diagnosed 1992 I think winter. Oh wait nope summer.
No need to apologize. Tell your neurologist's about the depression side effect of that medication
As someone who was once labeled as not likely to ever reach a long-term seizure free state (and have… read more
I have heard in the past from several friends who have tried many others including surgery, implants or non-medication alternative methods. However, I think it would help if those of you who have to share your experience with those are now at the point where they have been told that medication will never allow them to reach a long-term seizure free state.
If Q + A section was better organized, then I would not have to ask this question, but we have a support site, so we have to do what we can… read more
@A MyEpilepsyTeam Member Everyone gets nervous. Usually what helps is if you talk to your epileptologist/surgeon. From the surgeon, I learned there was a better chance of dying from a car accident… read more
Will it set off with excessive motion.
I have heard of this but I am afraid to shell out the money only ro have it not work. I'm waiting for it to be out a little longer so I can hear how well it works. If it works well, I would be more… read more
Does anyone with uncontrolled seizures work at a job ? And if so doing what ? I have held 4 jobs in my life running heavy equipment , welding , a prison guard and my last one when epilipsey hit I was a Rig Manger for Nabors. I'm on disablity now but man do they give me a hard time I have looked but getting back and forth and my job experience I can no longer do any of that. I'm 41 Thanks
I have worked 11 years as a janitor don’t know if I had more than one for sure or not because it was just me dumping trash and sometimes would get yelled at for skipping spaces but when I thought I… read more