I was just wondering what other people do after they have had a seizure to make themselves feel better. Everytime I have a seizure I use can't believe how tired it makes me and I hate it, I hate feeling ill and helpless lime this. I live alone so just end up spending days inside not seeing a soul and just sleeping. I get really down as there's nothing I can do and not really anyone I can talk to.

Looking for advice on safeguards to put in place, any devices used, and so forth. Living in the dorm with a roommate…

I have been very independant all my life wanting to do everything on my own even 22 years after my diagnosis I'm still like this, and it's hard for me to let others who actually want to help me, help me. I push people away. my best friends and greatest support fight back and refuse to let me push them away. but even though I know (now) i cant do this alone and i do have to rely on others i still find myself fighting this struggle to go at it alone.

I was born a month early and was small. They think lack of oxygen was a cause.

In your dreams when something scares you, it’s so much more intense than being scared when you’re awake Right!?
That’s how my episodes feel now ridiculously unreal, It’s so frightening and disgusting I don’t know how to describe the feelings that come over me now I almost start crying and freaking out, I’ve never had anything so intense I can’t take this much longer

I don’t have my tonic-clonic seizures often (which will put me at least a week behind), but some days my brain just does not want to do the work… my mental capacity gets depleted FAST and other people just think I’m lazy… And when I have to deal with deadlines, and can’t afford a day off just to mentally rest, it just causes more stress. Other than lying in bed or watching tv, what gets you out of your funk and energised?

I’ve got MIT and Harvard wanting to experiment on me during my upcoming sleep study.
I’d need to go to the MIT campus for testing and MRI prior to the surgery. They’re the ones offering gift cards and paying for hotel accommodations. They will both be doing testing during my stay at the hospital.
I knew my brain would be valuable someday!!

For the past year, I have a family member who just refuses to respect me. I've sat down with them multiple times explaining I am still the same person and I want to talk about other things beside medical issues and when I'll get my license back. I have to advocate for myself so much! Last time we got together, I had to talk to them how I need them to stop treating me like an invalid. I continue to be a very capable person. Epilepsy doesn't change that. This past week, I have now had 7… read more

My son has Dravet Syndrome a form of Epilepsy
He has significant cognitive delays. Almost 9 years ago he had a corpus callosum. He was struggling with learning. He went to a regular school. He was learning to write his name fairly well, learning both letters and numbers. About 6 years ago we had to move again in regular school. He no longer can write his name, doesn't know his alphabet or numbers any longer
This school year he is in a specialized school. ( He is struggling, they say he is… read more