Had Epilepsy For 15 Years, Well Controlled Until 4 Years Ago And Waiting To Try New Meds - Also Coeliac Diagnosis Recently. | MyEpilepsyTeam

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Had Epilepsy For 15 Years, Well Controlled Until 4 Years Ago And Waiting To Try New Meds - Also Coeliac Diagnosis Recently.
A MyEpilepsyTeam Member asked a question πŸ’­

Has anybody else been diagnosed as Coeliac? I'm told this could potentially be affecting the absorption of my medication. Any thoughts would be appreciated.
Thanks

posted March 19
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Anyone Else Get Treated With 5mg Zxyprexa And Saphris? They Stopped My Episodes My Doctor Said Not Made For Seizures But Worked Quickly
A MyEpilepsyTeam Member asked a question πŸ’­

Zxyprexa
Saphris

posted March 17
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Who Has Taken/is Taking Sabril (Vigabatrin)? I Know The Side Effects, But Am Just About To Start It, And Would Like To Hear Your Stories.
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posted March 13
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Has Epidiolex Made You Seizure Free?
A MyEpilepsyTeam Member asked a question πŸ’­
posted February 27
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Cancel Account
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posted February 27
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Hi, I’m Curious About Final Patient Cost For RNS Implementation. BCBS FED Ins. Thanks, D
A MyEpilepsyTeam Member asked a question πŸ’­
posted February 24
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Has Anyone Had An RNS Implant, If So, What Were Your Final Costs? Assuming Insurance Coverage. Thanks, D.
A MyEpilepsyTeam Member asked a question πŸ’­

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posted February 24
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VNS
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posted February 23
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Does Anyone Use An Apnea Monitor For Sensory-based Focal Seizures?
A MyEpilepsyTeam Member asked a question πŸ’­

I live with focal aware brainstem seizures that frequently cause hypoapnea and central apnea. For five years I've been trying to get help with sensory-based central apnea because it doesn't show on sleep tests conducted in sensory-deprived environments.

I began monitoring my apneaic events using a "sleep apnea" monitor with nasal canula, and pulse oxygen saturation monitor that I purchased on Amazon. Now I have data to give my doctor for the sensory-based central apnea.

I'm hopeful that… read more

posted February 20
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For Women Who Suffer From More Seizures During Your Menstrual Cycle, Have Any Of You Had An Ablation And Has It Helped Reduce The Number Of
A MyEpilepsyTeam Member asked a question πŸ’­
posted February 15
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