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Is Anyone On Clobazam As I've Being Put On It Yet To Try

Is Anyone On Clobazam As I've Being Put On It Yet To Try

Had epilepsy since 2020 am 55 now was a shock to be fair am on keppa start on 50mg am on 1500 now still having sezure so hope this helps but I see some have had surgery and how's that being if they had surgery

posted 4 days ago
A MyEpilepsyTeam Member

I too was put on clobazam before it was approved by the FDA, and it made all the difference for my epilepsy. I went from coming home from the hospital after having a grand mal, to my Dr raising the dose, to no seizures for 9 years. Remember that’s one person’s story, and that not everyone is helped by every med. I hope it helps you.

posted 4 days ago (edited)
A MyEpilepsyTeam Member

Kathryn,

I am pleased that unless I do not pay attention to my triggers, there are no problems. Not getting good quality sleep. not eating enough or properly, in my case being overheated are triggers. So is stress. I was told that though the Temporal Lobectomy did not do away with them, a problem on the left (my dominant side) avoided much damage.

Leslie

posted 3 days ago
A MyEpilepsyTeam Member

I was put on Onfi (Clobzam) before it had been approved by the FDA. I do not remember what I was taking before. I was being treated for Breast Cancer, but that medication made the Chemotherapy and Radiation not work. An Epileptologist said it would work. To get it I needed to get it from another country, because it was not approved by the FDA yet. It was also sent by mail. When it was approved, my Insurance covered it.

Leslie

posted 4 days ago
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