Has anyone else here ever experienced issues with social integration due to their seizures? Such as: awkwardness because you had a seizure in a social setting (perhaps a petit mal . . . and maybe the person you're with doesn't recognize it as being a seizure?); or maybe the damage to your memory leads you to not be able to remember names of new acquaintances; or maybe you cannot recall the would-be nostalgic memories of experiences you've shared with closer friends; or maybe while in your… read more
yes, people think I am staring at them and get all bent out of shape...I want to be like honey you ain't nothing to stare at....but its just a petit mal where I stare off for a few seconds and then come back.
As far as being to upfront during the postictal phase....I once told my brothers girlfriend that when he dumps her as he would she would remain a part of our family to not be afraid to come to us for anything....boy did I piss my brother off when she told him what I said...
Oh yeah I couple times I had a seizure in front of people one time I was in line at the bank and I had one I dropped my bank book and money in my hand as I just stood there and stared and For 10 or six seconds after it my money was on the floor and people were standing there looking Another time I was with a friend had one after my small bags in my hand and after came out of it he asked if I’m all right and the bags were on the ground and I said yes I was just thinking so he could never tell unless they knew what epilepsy was about
Thank you everybody for taking the time to share your own stories about socializing. It's a relieving change of pace to talk to folks who can relate to my experiences because they have had similar ones.
yes and I describe it as social integration problems too. anxiety, partials that are incredibly embarrassing (at a wedding... lord forgive me), yes I think I said something, Ive had police called as I wandered around breaking things after a fit too etc etc. (I said something) and I, least of all know what actually happened after these events. My romantic life also, I know ill fit in my sleep disturb them pretty quick, freak them out wind up in an ambulance, and so I flee as soon as it gets serious enough to be a relationship.. gods knows why.. I can make friends easily when Im well, but then I retreat in to solitude, I dont want people to see me when ill or moody or bore people with my tedious health problems either. rather than being "real" these are insecurities that we can conquer I feel.
When a group of people surround me after a seizure, and i find out later that in my post ictal state im just rambling. Or that i complain about the smallest thing in my post jctal( i normally dont complain at all.) Or that i have to discuss to staff at a college why i was in the guys dorm outside open dorm hours.. very awkward...