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Top 10 Search Results for "finding members about the same age"

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Does Anyone Elses VNS Hurt When You Run The Magnet Across It?
A MyEpilepsyTeam Member asked a question 💭

I got a VNS in 2017 and whenever i run the magnet across it it chokes me and hurts my chin and the left side of my head. I've told my Dr about it and he just turned it down. I've avoided using it because it scares me when it chokes me! It still goes off every 5 minutes and that doesn't hurt since my Dr lowered it's power but it still hurts with the magnet.

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A MyEpilepsyTeam Member

When I had my VNS, it was later labeled "faulty equipment" after on 2 separate occasions when the doctor told me to hold the magnetic wand over the magnet to interrogate the device to read it's… read more

Anyone Drug Resistant To AEDs?
A MyEpilepsyTeam Member asked a question 💭

Drug resistancy

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A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member, are you still having cluster seizures.. if so , talk to your Neurologist/Epileptologist , about Recovery meds, like Ativan and Lorazepam.

A Question, I Have Pretty Severe PTSD And I Am Wondering How This Will Affect My Seizures Or How I Wake Up Afterwards.
A MyEpilepsyTeam Member asked a question 💭

In the ambulance I kept losing consciousness afterwards and every time I regained consciousness I was screaming please help me. Is this normal?

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A MyEpilepsyTeam Member

Hi I am really not in a position to answer are give you advice just because I have never Had PTSD so I had a quick look on the internet and typed PTSD and seizures you should look on a site called… read more

Meds And Vitamin D
A MyEpilepsyTeam Member asked a question 💭

Hi is it okay to take vitamin D with your meds one a day thanks for advice

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A MyEpilepsyTeam Member

I always run it past your physician. That being said. Individuals with epilepsy should get their vitamin D level checked (as your neurologist how often for you).

Based on that, it may prompt a… read more

Sudden Fall-down Dizziness?
A MyEpilepsyTeam Member asked a question 💭

I take Vimpat, lamotrigine, and phenytoin twice daily and have a VNS implant. My epilepsy is pretty much under control except for every few weeks, about 20 minutes after I take my meds (morning OR evening) I get dizzy and literally can’t walk for a couple hours. And I don’t mean steady myself on a wall, I mean I will be fine, then I’m on the floor! I can usually crawl back to bed, but sometimes it’s so bad, I just lay on the floor of my bedroom after I crawl there! I HAVE told my neuro, they’ve… read more

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A MyEpilepsyTeam Member

Because it happen 20 mins after your meds means meds of that I am sure when I take my meds in the nighttime I feel woozy it is my large dose because my Epilepsy if it show happens on wake quite common… read more

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How Do You Know If Your Medication Is Actually Working?
A MyEpilepsyTeam Member asked a question 💭

How do you know? because when I get asked that question I get confused because if it means it completely stops my seizures and movement disorder then the answer would be no but most of the time it keeps them at bay but not entirely .
Are medications meant to stop seizures completely or does it take time to work and how can you know for sure if your meds are helping.

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A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member: I take 2 tablets of 750 milligrams Levetiracetam (generic form of Keppra) for 2 in the morning and 2 at night. Also, I take 2 tablets of 150 milligrams Lacosamide (generic… read more

Due To Taking Phenytoin For Over 55 Years I Have Had Many Fractured Bones ,phenytoin Effects Your Bones, Plus I Have Fatigue Alot,
A MyEpilepsyTeam Member asked a question 💭

I'm afraid of not getting enough exercise, having fatigue makes you have less exercise.

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A MyEpilepsyTeam Member

Hi, MarileeGramith, next time I will ask, it's a good idea, I did consider to try and get some line dancing, thanks for your support, Take care.

Are You Willing To Do Whatever Is Necessary To Help New Members Feel Comfortable And Quickly Have A Team Of Many?
A MyEpilepsyTeam Member asked a question 💭

I ask this because the site owners and techs are not able to provide an additional search option to search for New Members. And there have been too many New Members over the years who have come once or a few times and gotten frustrated and left because they do not get the true benefit of being embraced by a large enough team to not only make them feel welcome but also be able to provide answers and often personal experience regarding any related to seizures (types, symptoms, auras, side… read more

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A MyEpilepsyTeam Member

What does the team want to achieve in the future

What Does Everyone Mean By What Triggers You?
A MyEpilepsyTeam Member asked a question 💭

What does everyone mean by what " triggers" you this may be a dumb question but can Episodes/ fits be triggered by things other then like getting scared or stuff like that ?
I feel like when people are talking to me about random things I sometimes get this feeling like a random word almost sets something off?

A MyEpilepsyTeam Member

A trigger is something that will start a seizure. A simple example is not taking medication-that is a trigger. People take medication to stop seizures, so if a person does not take their medication… read more

Are There Any Friends Who Have Endured The Challenges Of Being An Epileptic Single Parent To Young Children With No Local Support System?
A MyEpilepsyTeam Member asked a question 💭

A new friend of mine on here (Dawn) shared this part of her story with me and is looking for help from those of you who know: "Hi i am raising my son 2 kids and i can't handle them because of my Epilepsy i get confused on what i want to do.and i really don't tired of being stress."

Please give her some advice!

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A MyEpilepsyTeam Member

I was on my own with my daughter for a few years. She was about 8 years old and had some issues of her own, but I talked to her about my seizures and what effects they have on me. I told her I would… read more