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New Neuro???

New Neuro???

Would anyone get a New Neurologist before getting a visual EEG done? Or would you get the EEG done first then switch?
I’m scheduled for Oct. 17.

posted September 10 (edited)
A MyEpilepsyTeam Member

To Let you Know, When I turned to the age of 18, I changed my Neurologist as felt I was getting anywhere with her, after having Epilepsy for 12 Years then, so with the current Neurologist A lot of progress has been made with him in the last 20 Years.

posted September 22
A MyEpilepsyTeam Member

It all depends on whether or not you trust your Neurologist /Epileptologist or not. If your can’t trust the Dr. Or the Dr. Doesn’t believe you, then it maybe a good idea to get a new Dr.

posted September 10
A MyEpilepsyTeam Member

I’m inclined to do the test, although while you’re waiting you can always look into others doctors (look them up online by location and/or name, to see their background and training). The test itself is being performed independently (I assume) at a facility with the setup for the VEEG. The results would be independent of your doctor’s opinion, so a new doctor can order the results from the facility. I would actually get a copy of the results for myself, to maybe show my primary care physician for explanation (I always forget to do that these days). Best wishes whatever you decide to do! I hope you stay as seizure free as possible…

posted September 10
A MyEpilepsyTeam Member

If it were me, I may consider a new neurologist if she/he was not up to what I expected. But in your case I would go ahead with the VEEG and ask for the results written on paper in "Patients Language". Then switch if you want to. The new neurologist can always put in a request for the results of the test.

posted September 10 (edited)
A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member Where is this proposed VEEG to happen?

Last October, I was in EEG Long Term Monitoring (mine was long because it lasted a week) at Brigham and Women's Hospital in Boston. I was not allowed to leave my bed without my RN or a PCA (to help make sure I did not fall or have a seizure). I had the room to myself, but the only place that the video camera and microphone were not on me was when I went into my bathroom.

Every morning a team of neurologists would visit during morning rounds and talk with me. I checked in on Tuesday morning, but I did not have my first seizures until early Saturday morning while I was asleep. I am pretty sure that they were triggered because Friday was the day that I was finally off Tegretol and my other anticonvulsants were lower.

The EEG sensors are cemented (special for technical teams) to hopefully keep them attached while you are having a seizure.

However, others who went to EEG Long Term Monitoring had and experience like they told you about VEEG.

Here is a link to a page at the University of Iowa where they are giving details on VEEG: https://uihc.org/health-topics/video-eeg-monito...

posted September 11

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