My daughter was diagnosed when she was 3 years old with symptomatic focal epilepsy. So far we struggle with education,socialising,self harming and most recent scoliosis. She is 11 now. Waiting to find out results from genetic test.

Hi guys,
I'm not on any medication at the moment for my tonic clonic and grand mal seizures.
I'm wanting to speak to my Dr about maybe starting Topomax.
Has anyone been on it? Any side effects? Does it help stop seizures?
Did you take topomax in conjunction with other seizure meds or on it's own?
Thanks heaps.

I have found lately that after a seizure I am so much more sensitive to criticism and to well basically anything emotionally draining.
Am I the only one?
I'm hoping this is normal!

How does anyone who is a full time parent get by with epilepsy and the fear of having one by yourself with just your child. I have grand mal and partial seizures. I'm to scared to have another child because I'm scared I shouldn't be a mother because of my epilepsy. I've recently also had brain surgery. So I have had a lot of help since my son was born. It's hard to feel like a mother
Is anyone else in this position or know how it feels? My parents help us but they are now in their 70's. They… read more

i want to know as much as possiable about it they r talking about doin this on my daughter

Can anyone suggest a good seizure diary app compatible for iphone? Thanks

I've just explored the site a little more. I came across the epilepsy association medication list and found diazepam rectal gel listed but no intranasal midazolam?? I realise the majority of people here aren't Australians, so perhaps it's something not used often overseas
I still occasionally have a very large grand mal that requires medication to bring me around, but I was put onto using intranasal midazolam years ago
Prior to the midazolam all my partner could use during a large grand mal… read more

Hi Everyone,

I've had JME epilepsy for 20 years. I was always on Epilim which kept me pretty well seizure free. A while back, my fiancé and I decided that we would change meds as recommended by my neurologist so that we can have a baby.

It wasn't as easy as first expected and I had a couple of seizures, trying to transfer over to Keppra. My neuro added Frisium which seems to have worked and I'm now over a year seizure free.

I am also now 19 weeks pregnant. Reaching the half way mark, I am… read more

I am back on the dating scene and am curious when should I tell the guy I am dating about my Epilepsy? and how do I approach the topic?

I have not been dating for awhile due to other health issues but now feel ready to start dating again. I am also vision impaired and where that is quite obvious and explains away the reason I do not drive I feel a bit unsure of when and how to approach about my Epilepsy. Is it something I should mention to them right away?. I don't want to scare the guy… read more