The Australian Epilepsy Project https://epilepsyproject.org.au/ is competing against 9 other projects for government funding. It is a popularity contest between illnesses for this funding
Because epilepsy is an unseen illness, it doesn't have a high profile like many other conditions and needs all the research and treatment help it can get! If you are in Australia, email your MP to support it and Greg Hunt, Health Minister as the website requests.
My previously healthy son had his first… read more
Hi guys,
I'm not on any medication at the moment for my tonic clonic and grand mal seizures.
I'm wanting to speak to my Dr about maybe starting Topomax.
Has anyone been on it? Any side effects? Does it help stop seizures?
Did you take topomax in conjunction with other seizure meds or on it's own?
Thanks heaps.
I hope you have a blessed Christmas holiday also @A MyEpilepsyTeam Member
Apparently, NES are 2+ caused by things like stress. Epilepsy is seizures that apparently have no cause. Don't all seizures have some sort of cause? Isn't stress one of the MAIN ones, or am I just completely wrong with this subject? It's confusing me.
Currently, there is still much to learn about seizures and what causes them. I believe most doctors, no matter the specialty, are too lazy to take the time to figure out what is "wrong" with a person… read more
I have found lately that after a seizure I am so much more sensitive to criticism and to well basically anything emotionally draining.
Am I the only one?
I'm hoping this is normal!
I feel you
How does anyone who is a full time parent get by with epilepsy and the fear of having one by yourself with just your child. I have grand mal and partial seizures. I'm to scared to have another child because I'm scared I shouldn't be a mother because of my epilepsy. I've recently also had brain surgery. So I have had a lot of help since my son was born. It's hard to feel like a mother
Is anyone else in this position or know how it feels? My parents help us but they are now in their 70's. They… read more
@A MyEpilepsyTeam Member I wasn't worried about my Pregnancy or my Son having the same Condition that I have b/c at the time my Doctor was in the Houston Medical Center which has some of the best… read more
i want to know as much as possiable about it they r talking about doin this on my daughter
What is your question about it. I might be able to answer it for you. My name is Manny Gomez nice to meet you. I have one in me right now. I just had my 3rd one two years ago. I am supposed to get a… read more
Can anyone suggest a good seizure diary app compatible for iphone? Thanks
What I do is I put notes on my phone. This way I can find my notes and write them down when I see my doctor. My doctor can keep my notes in my file and have a record of what is going on in my head.
Hi Everyone,
I've had JME epilepsy for 20 years. I was always on Epilim which kept me pretty well seizure free. A while back, my fiancé and I decided that we would change meds as recommended by my neurologist so that we can have a baby.
It wasn't as easy as first expected and I had a couple of seizures, trying to transfer over to Keppra. My neuro added Frisium which seems to have worked and I'm now over a year seizure free.
I am also now 19 weeks pregnant. Reaching the half way mark, I am… read more
I've just explored the site a little more. I came across the epilepsy association medication list and found diazepam rectal gel listed but no intranasal midazolam?? I realise the majority of people here aren't Australians, so perhaps it's something not used often overseas
I still occasionally have a very large grand mal that requires medication to bring me around, but I was put onto using intranasal midazolam years ago
Prior to the midazolam all my partner could use during a large grand mal… read more
Still foggy. I was given 2 doses up the nose. It worked. No hospital this time. It has worked for me 3 times now. Hangover sucks
I am back on the dating scene and am curious when should I tell the guy I am dating about my Epilepsy? and how do I approach the topic?
I have not been dating for awhile due to other health issues but now feel ready to start dating again. I am also vision impaired and where that is quite obvious and explains away the reason I do not drive I feel a bit unsure of when and how to approach about my Epilepsy. Is it something I should mention to them right away?. I don't want to scare the guy… read more
@A MyEpilepsyTeam Member not sure who you are speaking to when you ask why post a link everyone can't get to. I dont see any link in anyone's comments.