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And your husband when im.Having one. I know sometimes when I'm about to have one but not always so I really need to find out what this so called watch is so it can alert me when my heart beat changes and my husband when I'm about to or having one on his phone please help thanks
"Things like brushing your teeth can set it off."
I find this quite annoying as brushing your teeth is not an activity which is going to take your heartbeat out to the roof.....Must be a lot of… read more
Hey so tell me how old is your daughter so I can see what suggestions I know what I can help your daughter with and tonic clonic seizures are scary especially for the person who had one and waking up… read more
Do many of my epilepsy team members with nocturnal seizures use a wearable or mattress alarm to alert others that you are having a tonic clonic seizure?
You should be careful having one of them on your bed as the really sensitive to the point where if you had sex on that mattress it would go off or if you was having you time if you get what I mean it… read more
So far, my daughter only has seizure when falling asleep.
However, her bedroom is no close to ours and as a teenager, she closes her door... most of the time ! 😉
I think that it's dif per person, I have not a use of one, i have not had any of my previous docs etc bring that up to me, I just seen my doc 2 days ago, I give her a estimate for how many seizures I… read more
I been thinking about getting an alert system since im home alone. My service dog can be trained to press the button if i have a seizure and need help. He alerts to some seizures and barks if im down longer than 5min or goes and find the nearest person
Problem is my family has lack of communication skills. They ignore my service dog when he is trying to tell them something! Going back to me having no support at home. My question i guess is... if i can't get them to listen to me or my service… read more
I am concerned with the biometric features that tells the government, etc., where I am, what I'm doing, what my body is experiencing and might even be able to employ or inject some unwanted functions… read more
If so, do they live with you? Work? Collect SSI? Sleep with someone? Monitored 24/7? My sons seizures are everyday. Trying to see what other parents out there do.
Hi Patti, I know many don't know about seizure service alert dogs. This may be very helpful for your family in full. These dogs have possible abilities to detect seizures 1hr.to 1.5 hrs. before… read more
i want to know as much as possiable about it they r talking about doin this on my daughter
What is your question about it. I might be able to answer it for you. My name is Manny Gomez nice to meet you. I have one in me right now. I just had my 3rd one two years ago. I am supposed to get a… read more
What kind of seizures does VNS help reduce? What "requirements" must you meet to have it? I see my neurologist next week and I'm going to ask him about it. I thought I would get your opinions first.
VNS's help with grand mal, petit mal and partial seizures. BUT you have to stay on medication, also. I take very high doses of Keppra and Zonegran every day. Now, I was one of the first 1,500… read more
Does anyone who is still in high school that has seizures have a paraprofessional
Try to get medical insurance. U are eligible. Dont worry. Do u live in america?