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Hi guys,
I'm not on any medication at the moment for my tonic clonic and grand mal seizures.
I'm wanting to speak to my Dr about maybe starting Topomax.
Has anyone been on it? Any side effects? Does it help stop seizures?
Did you take topomax in conjunction with other seizure meds or on it's own?
Thanks heaps.
I hope you have a blessed Christmas holiday also @A MyEpilepsyTeam Member
I had an appointment this morning any my neurologist told me about Cefaly. I have terrible migraines and its a non medication treatment- both to prevent and rescue. Im doing a little bit of research of my own along with all the information he gave me.
No. How does it work?
To be truthful none as when I looked up to having one of them they cost thousands and thousands of pounds to have and you don’t get to pick the dog they choose it for you and that’s even if you have… read more
For me it's taking 9 weeks...after several emergency hospitalizations I was recently diagnosed with Epilepsy. There was a neurologist that came to see me in the hospital and started me on Remeron… read more
I received a letter from SSDI that the judge is 'fully favorable' about my hearing. Can anyone tell me what to expect? Im not sure what this means, i talked to my lawyer and i dont need to do anything. I had posted this the other day but not thinking i didnt post as a question so sorry for the repeat!
I went on disability when I was pregnant. My work got me assigned after having the payments for pregnancy. They got in touch with all my physicians. I have partial complex sz w/ generalized seizures… read more
Ive been experiencing rls for around a week now around 5 minutes after i go to bed for the night. Nothing i can think of has changed in my routine, diet, or meds. Anyone else experience this?
@A MyEpilepsyTeam Member The other stretch I couldn't remember - stand straight with your feet together and cross one foot over the other. Bend at the waist and try to touch your toes keeping your… read more
I have found lately that after a seizure I am so much more sensitive to criticism and to well basically anything emotionally draining.
Am I the only one?
I'm hoping this is normal!
I feel you
For those who have had brain surgery, specifically a craniotomy, what mental side effects did you have after the surgery? Do you feel if it affected your mood, causing or contributing to depression, anxiety or paranoia? Please share your experiences with this. Thank you!
Thank you so much for your thoughts, I really appreciate it! Sending you prayers on your journey of recovery!
My neurologist had me start hydroxyzine awhile ago for insomnia. It didn't touch me so he upped the dose. Still didn't do anything. So I told him I wanted off of it. He wasn't concerned with the… read more
How does anyone who is a full time parent get by with epilepsy and the fear of having one by yourself with just your child. I have grand mal and partial seizures. I'm to scared to have another child because I'm scared I shouldn't be a mother because of my epilepsy. I've recently also had brain surgery. So I have had a lot of help since my son was born. It's hard to feel like a mother
Is anyone else in this position or know how it feels? My parents help us but they are now in their 70's. They… read more
@A MyEpilepsyTeam Member I wasn't worried about my Pregnancy or my Son having the same Condition that I have b/c at the time my Doctor was in the Houston Medical Center which has some of the best… read more