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I had an appointment this morning any my neurologist told me about Cefaly. I have terrible migraines and its a non medication treatment- both to prevent and rescue. Im doing a little bit of research of my own along with all the information he gave me.
No. How does it work?
To be truthful none as when I looked up to having one of them they cost thousands and thousands of pounds to have and you don’t get to pick the dog they choose it for you and that’s even if you have… read more
I received a letter from SSDI that the judge is 'fully favorable' about my hearing. Can anyone tell me what to expect? Im not sure what this means, i talked to my lawyer and i dont need to do anything. I had posted this the other day but not thinking i didnt post as a question so sorry for the repeat!
I went on disability when I was pregnant. My work got me assigned after having the payments for pregnancy. They got in touch with all my physicians. I have partial complex sz w/ generalized seizures… read more
For me it's taking 9 weeks...after several emergency hospitalizations I was recently diagnosed with Epilepsy. There was a neurologist that came to see me in the hospital and started me on Remeron… read more
Ive been experiencing rls for around a week now around 5 minutes after i go to bed for the night. Nothing i can think of has changed in my routine, diet, or meds. Anyone else experience this?
@A MyEpilepsyTeam Member The other stretch I couldn't remember - stand straight with your feet together and cross one foot over the other. Bend at the waist and try to touch your toes keeping your… read more
For those who have had brain surgery, specifically a craniotomy, what mental side effects did you have after the surgery? Do you feel if it affected your mood, causing or contributing to depression, anxiety or paranoia? Please share your experiences with this. Thank you!
Thank you so much for your thoughts, I really appreciate it! Sending you prayers on your journey of recovery!
My neurologist had me start hydroxyzine awhile ago for insomnia. It didn't touch me so he upped the dose. Still didn't do anything. So I told him I wanted off of it. He wasn't concerned with the… read more
I have twitching that goes on for hours. Instense deja vu for even longer afterward. I had epilepsy surgery 3 years ago and these new episodes started a year ago. Has anybody had similar experiences after surgery?
Yes I have them when I especially need my hands still. But also when having a Seizure and than extremely tired afterwards.
I struggle with my mental health and my seizure activity doesn't show up on EEG. I have full tonic clonic seizures, I lose consciousness and seize for about 2 minutes typically. I dissociate first, You could ask me my name and I would not be able to answer. Its short bursts of dissociation almost, where I can be talking and then lose what I'm saying and the thought just shuts off entirely and then I will regain awareness after a bit, usually have multiple short dissociative episodes, sometimes… read more
@A MyEpilepsyTeam Member Thats pretty much how i feel, just disconnected from my body, unable to speak or process whats happening. I can't respond to anything or sometimes will get an unconscious… read more
I'm so frustrated I want to cry. I have searched and searched for help to do some paperwork for insurance. It's too complicated for me to comprehend, I can't process it. I need someone to break it down so simply, and do the paperwork too cause I'm forgetting what was said two minutes ago cause I just took in so much more information. I keep getting responses like here I'll send you an email with a lot of great resources you can use that are available to you. (Rant) that right there drives… read more
How about going to your local hospital. Or make an an appt to see your pcp to ask for guidance and direction.
Good luck hope you can put the Kleenex box away soon.