I think that I am, i know that there is not a cure for, but I I've accepted mine and it does make it easier knowing what I have to deal with, what do you think and your thoughts about it?
Learned to live with it. It's great to hear this is being treated just like anything else in life from birth. LEARNED TO LIVE WITH NOT CONTROLLED TO LIVE WITH!
If you think you may have had a seizure but are unsure how do you know? Mine are the type where I will black out and stare for 1-2 minutes. I sometimes get auras where I don't know if I actually then had a seizure.
Any recommendations for this?
Good question, I have to give my doc a estimate guess when t see her about how many, she is ok with that, because I don't know, but the est I got, she is ok with.
I want him to see what others go through caring for people with epilepsy. He is mad because I told him about what I wrote about him and how it helps to know you are not alone in the struggle in epilepsy. He won't even think about it. I am the one with the problem. Not him he says. My oldest son said I should be grateful. He said if I left my husband, I cannot stay at him. He would be me ina home right away. That hurts. I have been crying for a few days. My other son is a recovering alcoholic and… read more
The only in perso place I know that has support groups for the whole family à nd other families on how to handle living life ŵith epilepsy and one who has Epilepsy is at he Epilepsy Foundation. You can… read more
What motivates you to pick yourself up off the floor after a seizure or to continue taking lots of medication?
My kids are my motivation. I 'HAVE TO' be here, and functional for them. Seeing your mom get hauled off by ems and multiple head wounds is traumatic, I don't want them to experience any more trauma… read more
I took on for 23 yrs, the family was a broken family and I was straight and still am, 8 kids, but the one kid I moved in with is stealing from people and their property and cars, he doesn't know I know about his criminal behavior, I had the cops show up 3 days ago, I went and talked with them, 5 squad cars, they filled me in, I need out asap, but how, no drive license and little stuff to move, little money but how? Not a good situation at all. Any ideas.
You are welcome
anyone know how to get someone to back off if thier giving you a hard time about your epilepsy an related issues . My professor feels like I getting one over on the systems and i feel is riding my ass
Yes file a complaint , he is just ignorant .
Have any of you faced the challenge of losing your sole caregiver and then having to live alone? I am not there yet but I fear that inrvitibly will happen to me. As any epileptic I am trying to mentally prepare myself for a harsh reality that I am to face at some point. Any insight or thoughts on how you prevailed from dealing with grief to learning to live alone?
Dreaming, Most of my seizures have come while i… read more
Has anyone been in a situation where they have been having problems with their employer already in relation to your epilepsy, and now pregnant and also having that used against you too?
i can give you adviceand my experience of discrimination (you have been too) and went through thee longest most unnecessarily drawn out employment tribunal claim a my employer was trying to get me to… read more
I realize my anger is possibly a trigger but does anyone else experince it?
Just do your best
Do many of you live on your own? What made your choice to do so? Also, did it depend on the type or amount of seizures you were having?
I'm 31 living with my dad and step mom. Ive been living with them for 4 years since ive had epilepsy. They support me very well which I'm greatful for. My dad drives me to and from work every day and on the weekend take me somewhere to meet up with friends or family. But there are many other things I'd like to get to and be independent. My seizures are for the… read more
Thank you for the responses. My home is not near anything I can walk to. To uber to work is over $30 each way. There is no public transpiration that I am aware of. Like I said, my dad will drive me to… read more