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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Living Situation

Living Situation

I live in Douglas AK up crowhill down two flights of awarkard stairs and I have seizures alone on my couch and in my apartment my family is at aloss
we moved to from Anchorage ,AK to Juneau,AK when I was 8 lived here since with confrontations , accusations and people competing for attention and wired stuff
Age 3,I was hit by a speeding tow truck and had severe TBI with aquired disabilities had a nother TBI in 2016 via assault
I am treated badly for asking for help and people go after me in… read more

A MyEpilepsyTeam Member said:

If you can find an Epileptologist/Neurologist is a good first the Dr. Can help you understand what types of seizures you have .how severe or mild they are. Are your seizures life threatening. The better you understand your
Epilepsy, the better judgment you have for yourself, if you should or shouldn’t call for emergency help.

posted 3 days ago
A MyEpilepsyTeam Member said:

Have you tried for help including a proxy from the Epilepsy Foundation?
If not, then call now and share the details of your situation, especially a no local support system. The Epilepsy Foundation was created to help people in epilepsy to be treated as regular citizens and get the medical care that it is needed.

24/7 Helpline
How to Contact the 24/7 Helpline
The Epilepsy & Seizures 24/7 Helpline has trained information specialists standing by to answer your questions about epilepsy and seizures and provide you with help, hope, support, guidance, and access to national and local resources.

Online: Online Help Form
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posted 4 days ago
A MyEpilepsyTeam Member said:

Foster care?

posted about 14 hours ago
A MyEpilepsyTeam Member said:

Well,the first thing is I lived in Alaska for 3 years. In the Arctic Circle, in Kotzebue and Bethel. The first thing is that Alaska us not really like the lower 48 at all! In the villages I lived in, outsiders, or minorities, or even what the natives called their own people half-breeds were treated with aggression in ways that most people in the lower 48 would be shocked by. However, the only real enforcement there are the state troopers and they're not too friendly either. As far as medical treatment goes, it is also limited when it comes to resources and opportunities. I'm aware of this myself because of having lots of seizures up there and seeing the response first hand. So, I can understand the feeling of isolation and lack of support. Primarily, because it is uncomfortable for others to place themselves in your perspective.

posted about 19 hours ago
A MyEpilepsyTeam Member said:

Dr.Sperling at Jefferson specializes only in epilepsy. Heavy into resarch,he has me in double blind drug study,right now. Good luck.

posted 1 day ago
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