what mecications are anyone on this site taking for tle and epilepsy | MyEpilepsyTeam

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Happy Holidays
A MyEpilepsyTeam Member asked a question šŸ’­

Has anyone have any serious issues with VNS surgery. I already had a previous RNS type of surgery but this time they offered VNS and worried. I actual started working a second full time job to keep a reason to delay. What do you think?

Happy holidays to everyone and your loved ones!

A MyEpilepsyTeam Member

That is something I'm not familiar with. I wish you the best regardless of what you decide.

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VNS
A MyEpilepsyTeam Member asked a question šŸ’­

Has anyone had VNS surgery and how long does it take to slow down your seizures or even stop them. I am planning to get that surgery but afraid if it doesn't help it will still be on the biggest nerve of my body. I workout, jog and have jobs I have to pick up heavy things. Can anyone please help. Spring is coming in the Northeast ā˜€ļø Thanks in advance!

A MyEpilepsyTeam Member

Thanks for your response!

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Been Taking CBD Oils For About 2yrs, It's Linked To Seizures Less Severe, While The Seizures Still Exist. Anyone Else Had This Result?
A MyEpilepsyTeam Member asked a question šŸ’­

The regular scripts I take are Brivaracteram & Lacosamide which I don't have much faith in. Previously I've stopped taking Lamictal, Perampanel and a few others because I've recognised that those medications weren't helping
I'm disappointed that Doctors, Neurologists are still prescribing medications to people while knowing that they do not know if the medication will work for the person who they are prescribing it to, and that it's dangerous to stop taking an anti-seizure medication due toā€¦ read more

A MyEpilepsyTeam Member

The thing/issue about medicines is that there is more information + statistics about all the medications out there and the info. is all available to the doctors. Regarding alternative medications suchā€¦ read more

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Medication Sid Effects
A MyEpilepsyTeam Member asked a question šŸ’­

I am taking 3000 mg of Keppra and 450mg of Oxcarbazepine per day. Is there anything to reduce the side effects of these medications? I will do some research and share what I find out. Thank you

A MyEpilepsyTeam Member

I have learned one thing about keppra. Some people that take keppra experience what they call ā€œkeppra rageā€. I know keppra works at least for some people. I have been trying it and I did experienceā€¦ read more

I'm Afraid Of The Side Effects Of Epilepsy Meds. Am I Making A Mountain Out Of A Mole Hill?
A MyEpilepsyTeam Member asked a question šŸ’­
A MyEpilepsyTeam Member

Anyone that feels uneasy about their medicine, talk
to your Doctor & have him explain what the "side effects" would be. Usually
you can find a "different medicine," if the one your
using hasā€¦ read more

Just Started Keppra About 2 Weeks Ago. I'm Still Adjusting, Any Tips To Help With Appetite?
A MyEpilepsyTeam Member asked a question šŸ’­

I've had very little appetite lately, forcing myself to eat has been one of the more tricky things for me lately.

A MyEpilepsyTeam Member

Hang in there and try and stay pos

Taking Xcopri And Sezuire Reduction And Side Effects.
A MyEpilepsyTeam Member asked a question šŸ’­

I want to know one more time before I make my final decision before going into my neurologist visit this Aug 6th 2022 about the information people who have taken or are on this medication xcopri have seen in sezuire reduction and what kind of side effects from uncommon to most common you have experienced and any unusual side effects that have happened when taking xcopri and if or any side effects bit had with the medications you we're on . I now take brivact and topiramate an clobazam. Ifā€¦ read more

A MyEpilepsyTeam Member

Sorry to hear that David! It is even worse that your doctor does not already know this because the doctors and pharmacists has the program and databases to make sure to not give a patient medicationsā€¦ read more

What Medications Have Some Of You Tried Or Are Taking. I'm On Vimpat 200, But Fixing To Go To Taking 250mg.
A MyEpilepsyTeam Member asked a question šŸ’­
A MyEpilepsyTeam Member

Dilantin, phenobarbital, Carbilbenzapine, Tegratol, Carbatrol , Depakote, Depakeen ( liquid medicine ) , Neurontin , Felbatol , Keppra, Lamictal, Lamotrigine , Potiga , Vimpat, Fycompa , Banzel , andā€¦ read more

Is There Anyone Else On This App That Has Seizures That Are Resistant To Medications?
A MyEpilepsyTeam Member asked a question šŸ’­

Hi, I'm new. My name is Caitlin. I was diagnosed with epilepsy at age 6. And I figured out for myself that my seizures are resistant to medications just last year.

A MyEpilepsyTeam Member

Iā€™ve been on 10 different medications and only 1 kind of helps. I was on Topiramate for 1 1/2 when it stopped working. Iā€™m currently taking oxcarbazepine 1200 mg per day. Have been on it for 2 +/-ā€¦ read more

I Am Wondering If Itā€™s The Medication I Am On That Causes Me To Be Tired All The Time?
A MyEpilepsyTeam Member asked a question šŸ’­

Ever since I have had my diagnosis with epilepsy I have been nothing but tired all the time. I know my age could have played a part in this but this is beginning to take a toll on what I am able to do in a day

A MyEpilepsyTeam Member

Hi Robert! I totally agree with everything that you said. With all the setbacks Iā€™ve hadā€¦ not being able to do what I used to (when I had better seizure control before hysterectomy)ā€¦is a huge recipeā€¦ read more