Is it me ageing or the medication Waring off or time for a change or the progress of my epilepsy and having epilepsy and my sezuires for so long . has anyone had auras that tell them that a sezuire is coming on or a warning sign and all of a sudden the next day thier just gone and you don't have the auras that tell you you're about to have a sezuire. I know when I got my VNS my sezuires Turner from daily and weekly and monthly to nocturnal whenever I go to sleep at night and when I take a nap… read more
I will ask about Deep Brain Stimulation when I see my neurologist next. I had another seizure the other night. My fault again because I was overly hot. Heat is one of my triggers. I do take my medications, sleeping and eating well are very important. I was told VNS might also be a possible if my meds do not control it. When I wore an EEG Cap all they found were 5-8 second events while asleep/.
David, I'm just wondering if you have a VNS a RNS, or noth? I have both. The VNS Vagus Nerve Stimulator is actually in my chest with the leads in my neck and attached to my Vagus Nerve.
The RNS Neuropace/Responsive Neurostimulation device is under my skull on my brain having two leads.
I hope we all get and keep control of this disorder, Epilepsy.
This is true for all of us, we are not "Epileptic's". We are merely regular people that live with Epilepsy.
Love to all of us. 💖
It is even been proven as fact decades ago that epilepsy is a mutating disorder (a major reason that a cure has not been found yet) because it is actually epilepsies. And different individuals will have changes to their seizures over a lifetime and some adding additional triggers, auras and seizure types of mutations of a seizure to a variant of a standard type.
David, I'm glad that you have taken the time to do the needed research about your meds. I pray that God gives your Neuro the needed insight to know why these changes are taking place... and the best care can be provided. Shalom.
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