Have You Lost Your Taste And Smell? | MyEpilepsyTeam

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Have You Lost Your Taste And Smell?
A MyEpilepsyTeam Member asked a question πŸ’­

About six years ago I noticed several times when my wife would say, "Do you smell that?" and I couldn't. Then I noticed some foods like green peppers and onions that I hated I could go ahead and eat because I couldn't taste it. I did some research and one thing I found is epilepsy and brain surgery were in the list of reasons I could lose these senses. Anyone else notice it?

posted May 31, 2022
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A MyEpilepsyTeam Member

so interestingly i thought i would ask GPT4 bout the Dysgeusia (bad taste) I have with relation to the drugs I have been prescribed and for both drugs it found evidence that Dysgeusia is a side effect of both drugs (The drugs I am taking are valproic acid and clobazam). there is almost no information out there using 'regular search tools like google but there is definitely a link to Dysgeusia and these drugs. I hope it helps someone else. out there

posted April 22, 2023
A MyEpilepsyTeam Member

i lost my taste for a couple of months after my brain surgery and then it came back for a couple of months and now, without any clear reason as to why, my taste has gone again and I can almost not stand the sight of any food. it makes m nauseous. the strange part is that it's not a 'loss' o taste but the taste of food changes as soon as I put it in my mouth. my sense of smell does not seem to be affected

posted April 20, 2023
A MyEpilepsyTeam Member

For me my sense of smell loss happened all of a sudden after a certain seizure then it gets worst after every seizure. Just like my memory loss. My memory was okay when i was first diagnose with epilepsy, then all of a sudden one day after a seizure, that seizure took away my memory.

posted June 4, 2022 (edited)
A MyEpilepsyTeam Member

My wife has lost her sense of smell, she's mentioned it to the doctor but they can't explain why she should be that way. I'm sure it must be something to do with her form of epilepsy she has.

How many of you have this problem? Do you find it only comes on after you've just had a fit? Let me know.

Be safe
Stephen Greenwood

posted May 31, 2022
A MyEpilepsyTeam Member

Not to the medicine to toothpaste yes they put me on a para Donnell medic to please a mess worst one because I lost my taste buds with a paradigm toothpaste never go on it again most amount of chemicals in that thing ever I would never want it again I would recommend it either never worst thing in the world.

posted May 31, 2022
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