Connect with others who understand.

sign up log in
About MyEpilepsyTeam

Connect with others who understand.

sign up log in
About MyEpilepsyTeam
Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Have You Lost Your Taste And Smell?

Have You Lost Your Taste And Smell?

About six years ago I noticed several times when my wife would say, "Do you smell that?" and I couldn't. Then I noticed some foods like green peppers and onions that I hated I could go ahead and eat because I couldn't taste it. I did some research and one thing I found is epilepsy and brain surgery were in the list of reasons I could lose these senses. Anyone else notice it?

A MyEpilepsyTeam Member said:

For me my sense of smell loss happened all of a sudden after a certain seizure then it gets worst after every seizure. Just like my memory loss. My memory was okay when i was first diagnose with epilepsy, then all of a sudden one day after a seizure, that seizure took away my memory.

edited, originally posted 2 months ago
A MyEpilepsyTeam Member said:

My wife has lost her sense of smell, she's mentioned it to the doctor but they can't explain why she should be that way. I'm sure it must be something to do with her form of epilepsy she has.

How many of you have this problem? Do you find it only comes on after you've just had a fit? Let me know.

Be safe
Stephen Greenwood

posted 3 months ago
A MyEpilepsyTeam Member said:

Not to the medicine to toothpaste yes they put me on a para Donnell medic to please a mess worst one because I lost my taste buds with a paradigm toothpaste never go on it again most amount of chemicals in that thing ever I would never want it again I would recommend it either never worst thing in the world.

posted 3 months ago
A MyEpilepsyTeam Member said:

During June 2003 after the pharmacist's error replaced Tegretol with some high blood pressure medicine and for the 3 weeks that followed when I was without Tegretol (my only anticonvulsant at the time), I lost many parts of my sense of taste and a few of my sense of smell. However, this is the only time that I know that this has ever happened -- even after a aura/simple partial seizure barrage or transformation to an aura state.

posted 2 months ago
A MyEpilepsyTeam Member said:

I had no sense of smell and taste as long as i could remember even before i was diagnossed. ( which makes me wonder if i actually had epilepsy for much longer than i thought.) But a couple years ago i developed temporary episodes where i could smell and taste and those episodes were considered epileptic activity according to my neurologist.

posted 2 months ago
Sponsored Content
Learn more about available surgeries to treat epilepsy Read more >
Already a Member? Log in