The reason im asking this is because iv had brain surgery and it helped for a while . Then i started having them again about 11 years ago . Iv had the vns surgery twice now once when I was ten and about a year ago. It helps but i still have them . Iv had six parcel seizures this month and i just was wondering about the rns system that is what it's called. I talked to a person who gave me all the info and everything. and i gave her my doctor name and my name. what type of seizure i have and she… read more
Thank you @A MyEpilepsyTeam Member . Every one of these treatments I chose to do. Praying that it will make me seizure free or at least reduce my seizures down more .
Wow man I know how ya feel I gone though seven parcel seizures this month . I know it's hard. But I put all my trust in the lord to see me through . And he has for since I was five years old. That is why I'm still here today amen. And he can do the same for you as well . All you must do is believe amen
@A MyEpilepsyTeam Member wow Randy you need more than a hug after going through all of those things and still dealing with seizures once a day. I assume that you get all the evil side effects that go with them?
I’m in the same spot like you. I’ve been on the majority of meds on the Market, had the brain surgery and the VNS. I still seizure once a day.
I know about the DBS . I need to make an appointment to meet with my Epileptologist and discuss when we will be doing the DBS.I have done all the tests. They know that I’m qualified for it. Just need to set a date with my Dr. And the Neurosurgeon.
The RNS Is different from the DBS. It is similar to the VNS, and DBS, with the part, that it send a stimulate current through the brain. The part that is different, is that it sort of works like an EEG. The power box / micro computer, is placed under the skull . Any seizures the person has, gets recorded in the power box and the person can recover the info on a device and can send it to his/her Dr.
So do you want to know about the DBS or the RNS ?