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Hazy With A Total Lack Of Concentration
A MyEpilepsyTeam Member asked a question đź’­

So today is turning into one of those hazy brain days where I can't seem to concentrate on anything. I have no way to focus on anything and I really don't even want to work in my yard, what a day when you don't even want to goof off huh. So I guess I'm wondering if others have this too? My last partial was last week some time and I've had a few good days in there since then. But right now my brain won't stop skipping all over the place and my emotions are running like a freight train. Heck… read more

posted May 18, 2022
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A MyEpilepsyTeam Member

its okay to do a mini-rant and no1 will judge bc thats why we are here. hope you get to feeling better soon.

posted May 18, 2022
A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member,
Q/A-1 : Neurologists go through extensive Doctor and Neuro training and Epileptologist go even further, but unless they experience Seizures for themselves, THEY have no idea.
They can only guess what to do just like everyone else.

Q/A-2: As far as repairing the brain… Neuro’s are just a dumbfounded as the next. They won’t even consider to check out our second brain. (the gut) to see if there is a cause for the lack of nutrients that could be missing that our brain needs. Yet they “Supposedly” are doing what is so called “good” for us. My
Personal opinion is this: Big Pharma Tells them what to do, much like all doctors out there no matter their station. Unless of course they’re holistic.

Q/A-3: Big Pharma does not want to get involved because that would hold them accountable but wait oh they’ve got a clause that says they can push all kinds of drugs on to us and NOT be accountable. So basically they have the right to kill us with poison. Of course that’s how they deal with everything, shrink the population as much as possible, because we have something they can’t control. A BRAIN.

I truly understand everything you’re saying and I am complete agreement with you.

posted May 25, 2022
A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member - Yes, Yes, and YES!!! Add to all of that the pressure that I've put on myself all my life to be successful and my long term ability to get off my ass to do things, which I seem to have lost a lot of, and you're all but spot on.
The worst thing about counseling, and most doctors for that matter, is that they don't specialize in seizure patients. Heck I'm not even sure how much experience my few neuros have had? I mean personally I get that the brain is the nerve control center for the body but when it starts to malfunction, like ours is, how good are they are repairing it?
Hell there's not even an TRUE seizure meds out there, and if big pharma doesn't want to get involved with us what does that mean??? I feel like anytime that I go to see my neuro I get the typical "hey take two aspirin and call me in the morning" kind of answer.
Pot doesn't work, drinking is AWEFUL for you, but hey take these pills, that we're totally clueless about, and we're positive those will help. Oh and if they don't just come back and we'll put you on something else. Oh and if that doesn't work don't you worry because you can come back and we'll try something else. Then when you tell these A-holes things they always say that you're wrong. Uh I'm the one that's me, and I know how I feel, so how can I be wrong about those things? It's just insanely frustrating.

posted May 18, 2022
A MyEpilepsyTeam Member

I have rant's most the time and more often than not. I know that it is different
then I use to me before the seizures began. Everyone use to come to me for advice on how and why I would be calm in intense situations. Now, Oy Vey!
I feel like all I do is rant about how I feel or Hide in my room from the world.
There are days that my adrenaline is so High for no reason whatsoever.
On those days, I have to go for a walk. It is either that or put up with how fast
my brain is processing things.
What I mean about "processing things" is: It is NOT a good thing. Depression
will set in really fast and the next thing I know, S/I (suicidal ideations).
Yes, my Neuro is aware of this. I have sought Counseling and to NO Avail, I not been
able to have a Counselor that will relate good communications with me. I set an appointment for help and NO ONE CALLS BACK to confirm and appointment. Sorry for the "all caps", but it reaks me.
Basically, I'm up a Rapid River without a paddle & a 250 ft drop off Waterfall is at the end.
As you can see. Rant

posted May 18, 2022 (edited)
A MyEpilepsyTeam Member

I have them feeling sometimes as well.

posted May 18, 2022

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