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Tongue Biting Advice
A MyEpilepsyTeam Member asked a question đź’­

Sorry if this questions been asked before, im sure its been asked many times. But I need to know what you guys do about this tongue biting issue, im new to the world of seizures and i have to say the tongue biting part ruins me everytime. It always takes about a week until i can eat and drink normally again. From what ive learned by googling, they say to not put anything in your mouth at all for the risk of choking but i know someone else who suffers from seizures that suggests putting a pillow… read more

posted May 15, 2022
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A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member , I grind my teeth when I sleep & so I have TMJ, which is why I had to start wearing a mouth guard when I sleep. It helps protects my cheeks, lips & tongue. I’m working on getting a new one since my second one broke & without one, when I’ve had a seizure I’ve bitten my mouth but without one when I sleep I bite my cheeks, bite harder down compared to how a mouth guard would help me not to bite as hard. I see a physical therapist every 2 weeks & she not only does “physical therapy” on my jaw but she also does dry needling on my jaws, where she finds the trigger points of my pain & pokes a dry needle with no medicine in it, on both jaws & this has helped reduce my jaw pain level so much to where I’m not in tears anymore from the pain but pain still comes & so I take Excedrin for that. My dentist had sent me to a dental surgeon concerning my TMJ but the surgeon didn’t believe my TMJ was bad enough to where I needed surgery. Your friend in Texas, Becky

posted May 25, 2022
A MyEpilepsyTeam Member

I kinda have a question about the mouth guard thing myself. My dentist told me I had a problem with tooth grinding a while back. Told him I was epileptic. He brought the tooth grinding up like a year later.

posted May 25, 2022
A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member , It’s best to try & get a dentist to make you one & that way it will fit your mouth specifically because right now I’m trying to get another mouth guard & with not having any insurance I’m having to see a different dentist office & so they’re needing a signature from an Oncologist to work on me due to my bleeding disorder. So I’ve tried 2 different over the counter mouth guards & they were to loose. With my regular mouth guard, I normally wear it every night when I sleep & so I don’t recall ever biting my lip or tongue until last year when I didn’t have that mouth guard available & waking up with those sores, I knew I probably had a seizure & if nothing has happened with me having that mouth guard in yet to protect my mouth it’s bound to be safe cause it sure helps me from biting down & clinching my jaw due to my TMJ & due to my TMJ I find at times I’ve bitten my cheeks. So a mouth guard from a dentist that would make it to fit your mouth specifically would be best. I hope you can get one. Your friend in Texas, Becky

posted May 21, 2022
A MyEpilepsyTeam Member

Thank you guys for the answers, seems like mouth guard is the winner. I just wonder if any of you have put one in when u realized ur seizure was about to start. Either way, im assuming its safe since u can sleep with it. Ive never used or seen one before so im going to have to research it a bit before i get one. Thanks 🙏🏼

posted May 21, 2022
A MyEpilepsyTeam Member

i am glad if it works. The Mouth Guard would help with the tongue.
Leslie

posted May 19, 2022

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