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Seizure Today

Seizure Today

I am asking questions. Because I had a seizure again today. I had one two weeks ago. I have short-term memory. So I don’t really ever know what’s going on. I’m on Keppra currently. I’ve been doing good emotionally. So I’m kind of confused. Things I noticed this time. I woke up at 2 AM I felt extreme fear, and I felt massive headache, and severe abdominal tightening and pain
My eyes felt off almost like they were in two directions. Some fluttering at times. I managed through sleeping on and off… read more

A MyEpilepsyTeam Member said:

I hope your EEG goes well!! I do agree that you should journal, I have just started journaling my seizures. I've had seizures for a long time but stopped journaling, it helps to do so.. advice taken off of this great group! I got great results off of my recent EEG as well, I seem to be doing better with my results and medications they have put me on. It is hard not knowing. It sounds like your emotions are good and you are a positive person. This is good. You will have answers soon on what type of seizures you are having. Good luck!

posted about 1 month ago
A MyEpilepsyTeam Member said:

As Bryan pointed out, it is great to be eating right, sleeping, exercising and hopefully keeping your stress, anxiety and depression under control, but epilepsy doesn't care about the rules. You can be doing every right that you can possibly do, but then some other trigger comes along and brings on a seizure any way. And then there is the fact that because epilepsy is a mutating disorder, it is frequently adding no triggers, no auras, possibly new seizures, mutating some seizures and even making some seizures into a combination package (Whenever I have a full seizure, it is always followed immediately by a Focal Onset Impaired Awareness Seizures (complex partial seizures) and though some might believe that the seizure is over because I have got up off the floor and walked away, my conscious mind is not present). When I hear about the seizure at some point in the future (because unless someone tells me, I have no idea if I have a full seizure or focal onset impaired awareness seizure). Thus, I have had to play advocate for myself on several occasions for what my subconscious mind said to someone (I was in the focal onset impaired awareness seizure thus my conscious mind is not present). And even family members who are very experienced with me having this seizure duo do not always get it correct when I am actually out of the seizure.

I am not saying that these are all not very helpful and likewise is yoga, meditation and quite a lot of other means to relax the mind and lower anxiety and stress levels. The reality with epilepsy is that it does not play by the rules. It is not curable, thus you can go for decades without having a seizure and then something triggers one (usually an extremely traumatic event like an extremely closed loved one dying or in a coma, etc.).

posted about 1 month ago
A MyEpilepsyTeam Member said:

Make sure your neurologist knows what he is doing. I have complex partial seizures. He dodnt tell you what type you have yet?

posted about 1 month ago
A MyEpilepsyTeam Member said:

Sorry to hear that. Definitely call your doctor. Have you been genetically tested? Just for what medication your body does and doesn’t need not accept. Sending prayers

posted about 1 month ago
A MyEpilepsyTeam Member said:

@A MyEpilepsyTeam Member Were you aware during all of what you described happened after you woke up? Or was any of that information provided by something that your room mate might have seen?

Regarding to the list of epileptic seizures that Bryan was referring to:

https://www.epilepsy.com/what-is-epilepsy/seizu...

This will bring you to the home page on the epileptic seizures. Clicking on the name of anyone of them on the list on the left will bring you to the description of that seizure type.

Nocturnal seizures can come in the form of any epileptic seizure and many of the PNES seizures too.

None of us are doctors, but Bryan's theory as to your seizures is probably correct. However, as I said before write all of the details you have down, and look at the link above to find more details. if you have any questions, then feel free to ask them.

The important thing to do is to have all of the facts that you know written down about the seizures that you have experienced, any triggers or auras that you might have had, and potential triggers, all of the key details of the medications that you are on.

And when you are in any testing, scanning or appointment with a neurologist (or any other doctor or other medical professional), make sure you request a copy of any of the test results, scans and the neurologist's summary notes (unless this is a regular neurologist who know will provide you this without asking). When I was trying for the second time to be approved for SSDI, the psychologist that I saw told me that I should be making sure that I have a copy of all of my medical records and quite a few other things. I wish that he was the psychologist that I had been sent to 4 years earlier when I first applied. And I definitely wish that this site existed and the friends on here who were successful in court to get approved for SSDI were my friends back then to provide the information that they did for me in recent years.

posted about 1 month ago
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