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I had an appointment this morning any my neurologist told me about Cefaly. I have terrible migraines and its a non medication treatment- both to prevent and rescue. Im doing a little bit of research of my own along with all the information he gave me.
No. How does it work?
To be truthful none as when I looked up to having one of them they cost thousands and thousands of pounds to have and you don’t get to pick the dog they choose it for you and that’s even if you have… read more
I struggle with my mental health and my seizure activity doesn't show up on EEG. I have full tonic clonic seizures, I lose consciousness and seize for about 2 minutes typically. I dissociate first, You could ask me my name and I would not be able to answer. Its short bursts of dissociation almost, where I can be talking and then lose what I'm saying and the thought just shuts off entirely and then I will regain awareness after a bit, usually have multiple short dissociative episodes, sometimes… read more
@A MyEpilepsyTeam Member Thats pretty much how i feel, just disconnected from my body, unable to speak or process whats happening. I can't respond to anything or sometimes will get an unconscious… read more
I received a letter from SSDI that the judge is 'fully favorable' about my hearing. Can anyone tell me what to expect? Im not sure what this means, i talked to my lawyer and i dont need to do anything. I had posted this the other day but not thinking i didnt post as a question so sorry for the repeat!
I went on disability when I was pregnant. My work got me assigned after having the payments for pregnancy. They got in touch with all my physicians. I have partial complex sz w/ generalized seizures… read more
For me it's taking 9 weeks...after several emergency hospitalizations I was recently diagnosed with Epilepsy. There was a neurologist that came to see me in the hospital and started me on Remeron… read more
For those of you that have, how did you go about getting permission from your Dr to have a pet in your home if needed if you're renting?
I don't have an emotional support dog & my seizures ,like Maureens,aren't manageable.
Ive been experiencing rls for around a week now around 5 minutes after i go to bed for the night. Nothing i can think of has changed in my routine, diet, or meds. Anyone else experience this?
@A MyEpilepsyTeam Member The other stretch I couldn't remember - stand straight with your feet together and cross one foot over the other. Bend at the waist and try to touch your toes keeping your… read more
For those who have had brain surgery, specifically a craniotomy, what mental side effects did you have after the surgery? Do you feel if it affected your mood, causing or contributing to depression, anxiety or paranoia? Please share your experiences with this. Thank you!
Thank you so much for your thoughts, I really appreciate it! Sending you prayers on your journey of recovery!
Whats anyone or everyones experiences with SSDI backpay? Ive struggled years to get a favorable decision and am so so thankful! But now seems like they're putting me off, keep telling me they're sending messages to the payment center when i call them. Its not leading anywhere. I called my lawyer and spoke to the paralegal she advised mento wait another 2 weeks and call them back. Thank you all!
We didn’t when my husband got his, but that was back in 2017
My neurologist had me start hydroxyzine awhile ago for insomnia. It didn't touch me so he upped the dose. Still didn't do anything. So I told him I wanted off of it. He wasn't concerned with the… read more