Connect with others who understand.

sign up log in
About MyEpilepsyTeam

Connect with others who understand.

sign up log in
About MyEpilepsyTeam
Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Does Anyone Have Transient Epileptic Amnesia?

Does Anyone Have Transient Epileptic Amnesia?

A MyEpilepsyTeam Member said:

Do you do Karaoke or just go and watch others (perhaps even friends) doing it?

If you feel the anxiety is growing and you are worried about people seeing a lot of people seeing you have a seizure, then you need to find other forms of enjoyment that put you in a less stressful environment.

Good friends will agree to trying other things that will be reduce your anxiety and worrying. The idea is to find things to do to enjoy and take your mind off of worrying about when the next seizure might happen -- rather than something that is just going to raise your anxiety and make you worry more, thus increasing the chances that you will trigger a seizure which will in turn raise your anxiety even more so.

Reducing anxiety is about finding things to relax you and things to enjoy without any real risk of raising anxiety and/or stress.

And when you are at home, do the various options to reduce anxiety levels, like meditation. Here is a link to some examples that you can do at home: https://www.stress.org/15-stress-reducing-activ...

posted 4 months ago
A MyEpilepsyTeam Member said:

@A MyEpilepsyTeam Member Yes, everyone with epilepsy has issues with memory recall simply from the epilepsy, and most anticonvulsants and even some other medications have the cumulative side effect of adding to the hampering of memory recall. And then if you have some other disorder that also hampers memory recall or have brain damage to the brain, then it is even worse.

However, the key point is that just because you have memory issues does not mean that you have this.

@A MyEpilepsyTeam Member Write all of those details down and any other witnessed by others. Refer to this link about the seizure diary to realize the key details that you need to write down: https://www.epilepsy.com/manage/tracking/observ...

Also, what details can you provide about your migraines (length and auras and any other details are important) because migraines and epilepsy are common to have together. I had a lot of migraines as a teen when epilepsy returned.

Here are the details about migraines: https://medlineplus.gov/migraine.html

Here are the details about the link between migraines and epilepsy: https://www.webmd.com/epilepsy/migraine-epileps....
NOTE: I provided this link because the link to the US National of Library was all of the details in an article shared between medical researchers and doctors. The link above provides the details in Plain English.

posted 4 months ago
A MyEpilepsyTeam Member said:

No, my hand surgeon wrote in his note (that I saw through his patient portal) that I would be in hand therapy for 2-3 months.

posted about 1 month ago
A MyEpilepsyTeam Member said:

My hand surgeon might do my left hand too if my right hand goes well. He said doing both at the same time is a bad idea, so he's doing just my right hand first since that hand is worse.

posted about 1 month ago
A MyEpilepsyTeam Member said:

Why I'm excited about my surgery is because the issue I'm getting my surgery for (I'll be getting it on 3 fingers on my right hand, but I'll still be able to use my left hand) has been here since I was in high school and now it's getting fixed (on July 22). That's why I'm excited for the surgery.

posted about 1 month ago
Already a Member? Log in