@A MyEpilepsyTeam Member. I don't get the grand mals anymore or rarely if I do have them something went haywire or wrong at some point or terribly wrong over a one week period of my medication and sleep my worst ones with the nightmarish maigraines were when I was a child at age 5 up until I was 18years old now its just mainly nocturnal sezuires with some day time sezuires thrown in here and there. Am still on onifi and brivact and topomax with I get the fatuige, sleepiness and drowsiness along with the weight gain or loss. I've known my triggers have been stress the biggest and lack of sleep and I also have to limit my work no matter if it's for pleasure or just helping to get out and exercise no matter how careful I am with everything.

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A MyEpile...

@A MyEpilepsyTeam Member , that’s very true. The stronger the seizures, Grand Mal or you’re having clusters of seizures, can make the after effects worse.

When I was younger my seizures would knock me out and I would sleep the rest of the day away.I would a lot of times wake up in the early mornings. Other times I would try and talk and I wouldn’t be able to say a clear words . It’s was like the words were a tongue twister ( worse ) . I could even think clearly.

Those are a few things I struggled with when I was younger.

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A MyEpile...

so i guess the bigger seizures and where it hit often do more damage to our mind right? More bad side effects and it takes longer than a week to snap back to nomal for me. Its been 13-14 years now since ive been diagnose and it took me about 12 years to finally understand what seizures do/did to me. Being on this site also help me alot in understanding how epilepsy works. The “before” a seizure comes and “after” having seizures. Throughout the first few years of having epilepsy, my life was so different and became so hard to cope with, i kept thinking that its just temporality. That i will be cured soon, i didn’t accept this disorder, i was in denial. Well, not anymore, i finally accept this sickness and what it did to me. And by accepting it, life have become easier to deal with and eSier to understand how the seizures work. I hope i make sense, my speech is definitely damaged 😞

Thanks everyone for your answers. We all have similiar side effects. Have wonderful seizure free days,weeks,months,year,and life!

Before i got on meds: Loss of appetite for nearly 2 weeks straight at one point had to force myself to eat just to stay healthy enough. Tiredness, confusion, trembling of the hands and arms, bladder loss

After meds & surgery: confusion for maybe 2 seconds, minimal trembling of hands, i snap out of the seizure fairly quick now though most the time. Average time is maybe 10 seconds, compared to previously 20-30 seconds

Mine are: extremely tired, loss of appetite, confusion, migraines.