I've been diagnosed with partial focal/onset awareness seizures. My seizures either happen in my sleep and I am unaware of them and can only assume I had a seizure during sleep because I wake up with a sort of hungover feeling. (and no I don't drink). My first seizures were while I was awake at work and felt like I was going to faint, had some dejavu, dizziness, sweating, and confusion. Was seen at an onsite medical facility within minutes and was cleared from a heart attack or stroke by and… read more
It is very common for many of us to have more than one type of seizures and even for some to come on much later on than the others or even some being gone and the new type appearing. And your feelings during the seizures and after the seizures (including those that you have when you are asleep -- even if you have not officially been diagnosed as having nocturnal seizures--effects are also very common. An epileptic seizure is essentially a short circuit of the brain and after the seizure has happened the effects are part of the recovery process of the brain recovering from this short circuit -- just like a desktop personal computer that was on when a power outage happened and needs to recover once the power is back on.
Have you told your neurologist all of the details about the seizures? It is important that you share with your neurologist as much information as possible (especially the new things). And if you are not already doing so, then you should be keeping a diary of your seizures where you have listed all of the details about your seizures. You can keep the seizure diary in a notebook or download this application and keep the details on your cellphone:
https://www.epilepsy.com/living-epilepsy/new-se...
After seizures, there is no doubt that anyone can forget about before or exactly what happened during the event. It can definitely wear you out. @A MyEpilepsyTeam Member, weed or most pure form of cannabis (Epidiolex)? I was on cannabis oil without THC(the high effect), and it was so bad. I don’t remember what happened at this point in my life and I only know is, I was really foggy and not coherent cognitively.
There are no exceptions to the rule about weed. It’s a very in depth program. More than can be explained here
The reason I have not tried weed is because I am technically still employed and the company that I work for is federally regulated and prohibits the use of it. Even though in CA it is legal it doesn’t matter. I am also subject to random drug testing. This company provides health insurance for me and my family, some of my disability pay, and retirement. I’m contemplating retiring very soon so I’ll keep the weed idea in mind.
When they first started with me they changed my dosages a bit and even my medications. I would continue to talk to your doctor. Also, remember you can get a second opinion. My first doctor had me on an extremely high dosage and it was almost keeping me in a drunk state. My second doctor adjusted it. I didn’t have my first one until almost thirty. Good luck.