My son is 13 years old and has been diagnosed with intractable focal onset mortar seizures. Want to discuss this with my doctor as a possible treatment.
Well iv had the vns implanted twice once when i was ten and the siezures where to strong to control then and that didnt work . So i had brain surgery. Then i started having them again when I was 20 and they implemented a new one and its helped a lot cause i have complex parcel siezures. And it controls them pretty good but i can still have them. The pro is it stops them aromatically cause if ya dont have a magnet it can work on its on . But the con is the shock the high the shock you will lose your voice
Pro : it help reduce chances of seizures
Con: the first few days to a week using the VNS , the energy pulse can cause struggle with speaking and make you want to cough.
Pro: it could work great for you
Con: the VNS may not work well for you.
Pro: you will get use to the energy pulse, to where you won’t even notice it.
Con: it may take a few appts. To get the VNS to the right settings to control your seizures.
Pro: works well when it’s on the right setting.
Conn: The power box does die after so many years.
Pro: it can be replace with a new power box.
Those are some that I could think of today
At the time of my implant I was have approx 70 seizures per month. I haven't been seizure free since implant but I am sooo much better. I have been months at a time without seizures but have had break thru seizures from time to time. Until this past month, I had been seizure free again for several months. I have bilateral temporal lobe epilepsy. I have unaware seizures (complex partial) focused from the left side of my brain and aware seizures (simple partial) from the right side. With no apparent "cause" for onset. I actually see my neurologist tomorrow to see what's happening now. The only con i have with the VNS, is hoarseness. That is really really the only thing. It was the best decision for me since a lobectomy was not an option. They can adjust the milli amps to suit the needs to control the seizures. For many it does make them become seizure free. For some, I've heard it hasn't worked. However, I have heard more great results than poor ones.
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