Connect with others who understand.

sign up log in
About MyEpilepsyTeam
Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Who Takes Tegretol To Help Control Their Seizures?

Who Takes Tegretol To Help Control Their Seizures?

Ive always taken this drug from when i first was diagonosed as a young girl. I had a emergenercy viedo call with my epilepsy nurse today. It wasnt the news i was expecting to hear…
I am anxious to take them knowing they made me feel like shit for however long..
I had a toxic reaction to them…

A MyEpilepsyTeam Member said:

Here is an article from the NLM with regards to the toxicity of Tegretol/Carbamazepine: https://www.ncbi.nlm.nih.gov/books/NBK507852/

posted 3 months ago
A MyEpilepsyTeam Member said:

Thanks for the info john ...youve just reminded me i havent had my blood tested since the beginning of the covid debacle ill b making an appt pronto

posted 3 months ago
A MyEpilepsyTeam Member said:

@A MyEpilepsyTeam Member

What meds are you on some do that. I was literally on almost everything but nothing new. I've been on the same since 2011 and added onfi 2014

posted 3 months ago
A MyEpilepsyTeam Member said:

@A MyEpilepsyTeam Member The information about a time limit on how long you can be on a medication for Tegretol is one like every other long-term medication -- it varies based on the individual.
And the only way that Tegretol will reach a toxic level is if your neurologist is not testing to check on the level in your blood stream. Too much can trigger seizures. It takes an extremely high level --which all except a bad neurologist will never let you get to--that makes it toxic.

posted 3 months ago
A MyEpilepsyTeam Member said:

Ive been on tegretol for 9 yrs to control grand mal seizures....ive heard that you can only be on it for a short time as it can eventually go toxic ..

posted 3 months ago
Already a Member? Log in