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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Can Anyone Here Tell Me What To Expect When Applying For Disability?

Can Anyone Here Tell Me What To Expect When Applying For Disability?

I have reached a point where trying to work is no longer an option for me. The whole process of applying for disability seems very overwhelming. I did get through the initial application so now I am waiting to see what is next. I was told I may be sent to some specific doctors chosen by the Social Security Administration. I am not currently on any medication because everything I have tried to date makes me sick and my regular doctor said I am "medication resistant". I would just like to have… read more

A MyEpilepsyTeam Member said:

Thank you both. At this stage I think the best thing for me to do is to have another appointment with my doctor and talk about this in more detail. The doctor is the one who originally said I need to apply, so I think he must have a good handle on things. I have him and my wonderful husband to help me so I will keep at it.

posted 4 months ago
A MyEpilepsyTeam Member said:

It took me 2 years to get approved for disability. And that is with the help of an attorney. DO NOT GIVE UP. KEEP APPEALING!!!!! I had to go to a hearing. I was only in there for a few minutes. They only asked me what it feels like. And apologized for it taking 2 years. I even had video from the EMU as well as home video if the seizures. EEG data. Scans, ETC. It can be a very grueling process but keep fighting!!!

posted 4 months ago
A MyEpilepsyTeam Member said:

@A MyEpilepsyTeam Member
Hi, just wanted 2 let u know that SSD is a gov. funded program. I have never heard of it being different in each state. I have been on it since 19yrs old. N although I began working @ 12 (there was no laws than 2 protect child labor) I was working 4 mostly cash in diners, pizzareas, n an ice 🍨 shop. I survived mostly on tips. When I was in Nursing 🏫 I worked @ a Medi Center as a Manager n that's d only thing dat really saved me n brought my $ up a lil, but I got partially paralyzed@ 19 so that was that 4 a bit. Anyways, since I was so young they denied me twice, the 3rd time I went in front of the board of 7 doctors n they could c the pain I was in n knew there was no way 2 deny or they would have an attorney on there butt.
U get ur $ retro from when u 1rst applied. So if it's 1 or 2 yrs. They owe u 1k 4 every month. Now they just raised the SSI amount 2 a lil over 1,400. If u get less, they will give u SSI. NOT SURE HOW MUCH since I'm waiting, plus eligible 4 medicare, medicaid, food stamps but u have 2 b under that qualification amount. Also can get Section 8, which is called HUD, or rental assistance. I have 2 keep on them or they will just ✍️ u off. Plus don't 4get the checks 4 SSDI Beneficiaries frm IRS if u get it in time when u get it, I recommend automatic deposit into it ✅ account. U'll have the ✅ every 3rd of the month. Or Friday b4 if it's a Holiday weekend. If u get a lawyer, he gets 1/3 9f ur back $. 8f u don't feel confident, by all means, I'd advise 2 get one.
I hope I helped a lil. Don't let that board intimidate u. They r regular doctors who do it 4 the extra $ on the side!! Member I was in Nursing!! 😂

posted 5 months ago
A MyEpilepsyTeam Member said:

You will need date of birth paper, ID , Social Security, income, and as much Documentation from all professionals who know Of your Epilepsy. If you’re trying for RSDI/SSDI they may want info on all your jobs or career.

You may not qualify for SSDI , but might qualify for SSI

posted 5 months ago
A MyEpilepsyTeam Member said:

@A MyEpilepsyTeam Member It is great to hear that your doctor was the one that told you that you should apply. This means that your doctor will be willing to fill out the official paperwork in detail to explain what has been tried and was not able to get your epileptic seizures to a long-term seizure free state or at least to a highly managed level such that it would not prevent you from working. Talk to your doctor at the appointment and ask the doctor to fill out that paperwork.

posted 4 months ago
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