I am a mom of a 13 year old who is diagnosed with Epilepsy - focal onset seizures when he age 7. His seizures last within 25 seconds and he is generally aware when they come n go. He also gets Auras before getting the seizure..not always but most of the time. He was on Oxtellar XRwhich helped him to be seizure free for 2+ years after which on doctor's advice we got him off meds. He got the seizures again in few months and we put him back on a lower dosage of Oxtellar XR - 300 mg AM and PM. With… read more
Thanks Shannon. How many meds did u try before controlling the seizures ?
We have tried 2 so far and both have caused more damage ...just curious
I have saved ur email..how do I delete the message from here ? New to this site.
Once u get my email message, keep it, but will u remove it from the post for privacy reasons.
If you'd like to talk more, my email is (Email address can only be seen by the question and answer creators)
We can discuss anything. And I can give u my other contact information there.
I had a very difficult time in school. I was very active as well. And cheerleading was my thing. As my memory issues got worse, my grades slipped and my oarents took me off the squad, (before finding out it was due to epilepsy) I had to focus especially hard on my studies. Reading things over and over so it would "stick" Talk to him about things like that, memory, comprehension, concentration, and see how he is doing with that. Active is great. But, like everything else, in moderation. He will most likely become more tired quicker than others.
As far as connections, (I wasn't considering the cover factor) check Facebook pages too. Maybe suggest a group like this for him. Or he may be more comfortable starting off with a smaller group just to get used to sharing and connecting. Encourage him to interact. He may think it's lame (teenagers lol) but it will really help him and others can be a guide for him.
Shannon , my son is very competitive with studies and is a very hardworking kid. He does this on his own… not that I force him. This worries me a lot as the meds and the reoccurrence is making him more tired and he keeps pushing himself harder. How did u manage school and the meds and the symptoms ?
How can I connect with other teens with seizures . I have been trying to do the same… I see eplilepsy Dallas foundation but online they say since COVID, they are not meeting in person. Can u point me to some please .