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Who Has Been Given Gabapentin When It Is Not An Anticonvulsant For Your Type Of Epileptic Seizures?

Who Has Been Given Gabapentin When It Is Not An Anticonvulsant For Your Type Of Epileptic Seizures?

Gabapentin is not supposed to be given to an epileptic who has focal seizures because it will usually trigger more of them (as is the case of too much of any anticonvulsant will do for epileptics). And Gabapentin may worsen absence and myoclonic seizures, so caution should be observed if the patient might have these seizure types.

Details on Gabapentin from the Epilepsy Foundation
https://www.epilepsy.com/medications/gabapentin....

I experienced a lot more seizures when my neurologist… read more

A MyEpilepsyTeam Member said:

As a whole let’s just say I hate seizure meds and I feel like they do a lot of harm to our bodies. More than what the dr are willing to tell. Yes the may keep seizures at bay but at what cost. Am I saying stop taking your meds NO I AM NOT!!! I take them just be smart and do your own research listen to your body because our bodies tell us things that don’t always listen to us about. Just be safe. Don’t over medicate.

posted 3 months ago
A MyEpilepsyTeam Member said:

As John points out everyone is different. In my case I take gabapentin with my keppra and it seems to be the only one that doesn't have some type of side effect. The gabapentin I take during the day (3x morning noon and evening) and it helps with my concentration. My seizures are mostly nocturnal.

posted 3 months ago
A MyEpilepsyTeam Member said:

all seizure meds work for one person but not another. I started out on Gabapentin after brain surgery. It was increased over the years. Once on maximum Lamotrigine was added. They could not take me off Gabapentin as it caused more seizures. Everybody is different. My Doctor understands more about types of seizures I have than neuro. Have been seeing him for 30yrs. I have some seizures when have had to be intubated at local Hospital then rushed through to my major Hospital and put on life support. My neuro always listens to me. I have just had tests where all wiring is attached to my brain for 3 days. Will get results Tues. I have different types of seizures. Feel you need to keep looking for a neuro who WILL listen to you.

posted 3 months ago
A MyEpilepsyTeam Member said:

Gabapentin/Neurotin is used for fybromialgia, diabetic nerve pain, and complex partial seizures. It was prescribed to me in the mid early 2000's, I would feel off balance and had muscle aches, for a while. I took it for about 3 years, then I was prescribed Pregabalin/Lyrica, which is also used for fybromialgia, diabetic nerve pain, and was approved for complex partial seizures, in 2007. I couldn't tell you if it works on this type or any other type of seizures, because I had been seizure free for over 10 years, because of brain surgery. I've been a very low dose of Pregabalin 125 m.g. since 2008, just to make sure that I continue to be seizure free.

posted 3 months ago
A MyEpilepsyTeam Member said:

When I was first started on the Gabapentin, I was so off balance, that I couldn't walk a straight line. The pharmacist immediately ID'd the problem, and I called my Neuro. The Med was changed!! (Yes, I have absence seizures). I am now/ again in the process of seeing a different Neuro. The Epilepsy specialist refused to try to address the problems that I face related to narcolepsy. ... I don't know why Neuro's can be so proud that they refuse to listen!

posted 3 months ago
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