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Epilepsy Centers

Epilepsy Centers

Has anyone ever been to or had experience with an epilepsy center/hospital that specializes in that? I have an appointment with one, and I am pretty nervous about it. I am looking forward to getting some answers, but I am also nervous for what may lie ahead of me. My neurologist has recently told me that she fears my seizures are becoming "medicine resistant", and I don't have to be a doctor to know that they have been much more frequent in the past two years than they have been most of my life… read more

A MyEpilepsyTeam Member said:

Just had my 2nd stay in the EMU. I was only there for 4 days. Honestly, I felt really safe knowing that I had at least one nurse outside my door. My doctor said he got a lot of information. Even though I was diagnosed at 18, I apparently have a mild form of lennox gastaut syndrome. I read, played on my phone, and colored in an adult coloring book meant to be calming. I'd recommend it, and see it as an opportunity. Just me.

posted 3 months ago
A MyEpilepsyTeam Member said:

Here in Idaho, the local specialty hospital has a wing designated for epilepsy. They have a doctor that like so far. He is easy going, listens with interest, and takes what time is needed with me. I have never however been to an epilepsy center. I was diagnosed in 2007, and been on some form of medication since. However, this May, I may be taken off of the epilepsy medication I am currently on. This will be welcome by me since I do not have seizures, but instead chronic headaches.
I will not try to tell you what to do, because I have not experienced this personally. But I would advise you to do your research, and decide if this is something you want. If you do not want to have an induced seizure, would wonder why they have to do that, personally.

posted 3 months ago
A MyEpilepsyTeam Member said:

My last In hospital EEG , They allowed family family visits, in between certain hours of the day.

edited, originally posted 3 months ago
A MyEpilepsyTeam Member said:

My last day with my pediatrician Neurologist, the Dr. Refered me to an Epilepsy clinic. After getting to know my Epileptologist, and him knowing , through my mom, what my Epilepsy was like . After knowing the basics to my epilepsy, it was his turn to try and find the right path for my Epilepsy. A few appts. With my Epileptologist, the Dr. Made me an appt, with the Seizure Unit at a hospital, for a 7day in-hospital EEG.

I’ve had many EEGs in the clinics, but never a 7day EEG, at a hospital. My Dr. Told me, that I may want to bring things for self entertainment. It was my first experience, out of the 4 times, that I’ve done the in-hospital EEGS. So before my hospital experience, I pack a duffel bag, with things that I could self entertain myself. I packed, puzzle books, reading books or magazines, playing cards, and electric hand games, but today it wood be pads and smartphones with game apps ( don’t forget the chargers). They also have a tv in my room, but there is so much that I could or liked watching. Sometimes there wasn’t much of anything. that I would even bring snacks and my favorite juice or pop.

The Seizure Unit I stayed in, everyone was free to walk around and there was a leisure room. I could visit with others in the unit, they have board games, puzzles and a tv . Well I hope you have a good experience.

posted 3 months ago
A MyEpilepsyTeam Member said:

Very useful to determine if there's a physical prob causing seizures, where they start etc. Provides a computerized map of the brain, what happens to electricity during a seizure by tracing brain waves too. You'll be in a nice safe hospital with electrodes like a regular EEG on. Treatments will then be specific to your own epilepsy. Need to be having a seizure so the EEG can show how brain waves change during a usual one.

posted 3 months ago
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