What’s Everyone Triggers For Their Epilepsy And How Does It Affect Your Daily Life? | MyEpilepsyTeam

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What’s Everyone Triggers For Their Epilepsy And How Does It Affect Your Daily Life?
A MyEpilepsyTeam Member asked a question 💭

My triggers are stress,lack of sleep, and heat. I had to get on meds for my sleeping cause the seizures would get so bad. School can stress me out too much sometimes. I play softball so I’m constantly in the heat so I always have that risk but I enjoy it and it makes it worth it.

posted March 5, 2022
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A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member auditory triggers are hard! I try to tell people that YouTube Videos on a cellphone can trigger then they just look at me in disbelief. For me it's a couple specific frequencies. But Motorcycles, noisy gyms, cell phones, rapid noise changes... All fun stuff

posted March 22, 2022
A MyEpilepsyTeam Member

Too many different noises such as cash registers. I've had so many complex partial seizures at cash registers. Someone asks if I'd like a drink with that, music's playing, and suddenly I can't talk. Especially if I'm somewhere that makes me feel claustrophobic. Missed medications of course, and my menstrual cycle. Lastly, not getting enough sleep.

posted March 21, 2022
A MyEpilepsyTeam Member

First thing I like everyone , there are the basic seizure triggers, like missing med doses ., lack of sleep, and stress.

The one trigger I have that is basic , is when I get over excited. So when I go to a big sports center or convention center, for some type of event, and big family parties trigger my seizures.

posted March 6, 2022
A MyEpilepsyTeam Member

The seizures are 30 seconds long. I maintain consciousness and awareness. During strong ones I just need to breath through them and focus on what's real and what's not.
Here's the thing that this site has taught me. How severe someone seizures are is 100% subjective. People see having 1 grand mal a year as terrible but I could have 20 of those in a day. As I was at work leading a meeting....was I a ticking time bomb that going to off and every day work was going to look at me weird? No, but it drastically affected my life and mental health.

posted March 6, 2022
A MyEpilepsyTeam Member

Overall stress just primes the situation. But I have simple partial seizures with auditory features. So there are a lot of different sounds that can trigger a seizure. It wont always trigger a seizure unless I am primed to have one. Cell phones speakers, Harley Davidsons, random sudden changes in sound, being in a loud packed gym! Overall it doesn't change my life because I can't let it. I live a relatively normal life. I work and drive because the nature of my seizures. I just get to know certain things will make me uncomfortable.

posted March 5, 2022

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