I am still told how many new messages there are each day, but I only have access in the list of a portion of those new messages. For example, right now it indicates that I have 11 more notifications, but there are not any in the new messages box for me to click on. This started a few weeks ago. And I have already contacted the managers of the site (and I was not the first to tell them) and their techs are working on the problem.

What I mean is I have been seeing emails on my regular email account. I am not comfortable with other people besides the ones with this app being able to see my comments or other comments of people on this app. If I can change this what do I do?

My daughter Emma is diagnosed with Juvenile myoclonic epilepsy 2020. The last two months she seems to have some difficulties, answering a simple question. For ex. if I ask her something, I dont know if she has heard the question? But it seems like she can hear me and if I ask the same question once more it takes a couple of seconds and then she answers. Has anyone experienced this?

Have any of you faced the challenge of losing your sole caregiver and then having to live alone? I am not there yet but I fear that inrvitibly will happen to me. As any epileptic I am trying to mentally prepare myself for a harsh reality that I am to face at some point. Any insight or thoughts on how you prevailed from dealing with grief to learning to live alone?

I am taking 3000 mg of Keppra and 450mg of Oxcarbazepine per day. Is there anything to reduce the side effects of these medications? I will do some research and share what I find out. Thank you

I found it because I was looking through seizure stuff on google. To be honest, At first I thought it was silly and said to myself "whatever, but I'll sign up. See what it's all about". When I Looked through it all I felt like it didn't really help. Like seriously? People actually talk about their feelings on here? Haha wow. Yea, well I logged on again a couple months after I created my profile and totally changed my opinion. I find it helpful and have people very understanding about epilepsy… read more

So this question is based on the fact ,that how 2 neurologists, a general practioner and ER doctors didn't recognise my symptoms were due to a TBI (traumatic brain injury), I partly blame myself as i only remembered a few incidents that could lead to an instability of the cervical spine awaiting scan results
Which comes hand in hand with TBI
Are we to blame as patients for not remembering an incident that have caused our symptoms or do we blame the medical professionals for not recognising… read more

I was just wondering