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Any Advice?

Any Advice?

I asked a question awhile back, but had a hard time getting back in and then life just swept away. I have a 20 year old son who started having seizures at 19. He’s scared. So am I. We haven’t gotten a lot of Information regarding why this is happening. He hasn’t been able to pin down. Any triggers or anything. But after he has one, he gets violently sick and throws up for a long bit. Is this normal? He says that his body is sore for the next week because of the seizure he has had… read more

A MyEpilepsyTeam Member said:

Hi Kristi!! My name is Julian and your son and yourself sound exactly like me and my mothee!! The same story! Im 21 now and was diagnoised ag 19.. I get violwntly sick and every seizure I throw up after really badly. Stress is a hugee trigger for me as well!! Youre not alone!! You have all of us here! My mom would be happy to talk to you persoanlly from a mothwrs perspective opposed to mine as it is a bit different! Youre not crazy! I was persxribed medical marijuana because of the stress trigger, and if your son doesnt wanna smoke thats understandable I use edibles and such. I get sore and Nauseous following my seizures and it lasts up too a week! Its exhausting but your aon sounds exactly like my story and im happy to help as much as can regarding advixe and someone too vent too!! Hope you and your family find some peace and aolutions ❤️❤️

posted 6 months ago
A MyEpilepsyTeam Member said:

He’s still adjusting to his diagnosis and whaling his displeasure of it. Randy gave you some really good advice there, very helpful! I would suggest he cut back or stop drinking alcohol. If he can keep it to just one drink would be good, none would be better though. His lack of sleep causes stress on top of what he’s already experiencing and his eating habits also are causing stress. It’s a slow process but beneficial if eating regular and healthy along with a better sleep regimen will ease a lot of the stress off of him also. Epilepsy is a life changing game for us and we need to treat our bodies better because of it. Talk with his doctors, they may be able to offer you a good and healthy diet plan and sleep regimen for him also. What about a part-time job? Maybe working at home for now till he’s regained some of his confidence in himself? That way he can earn some money and take naps in the afternoon if he’s tired till his sleep regimen is better controlled too. I know it’s a lot of changes for him and for you also, take it one day at a time. Working together and with your sons doctors will be a big win for you all. They have a lot of plans for different areas that your son will need as he adjusts to his diagnosis. His doctors care about your family and will be there to help you through it. Just talk to them. I wish you good luck today, tomorrow and your future dealing with epilepsy. You can do this! And you will do fine. Just one day at a time!

posted 6 months ago
A MyEpilepsyTeam Member said:

Are trying to say that your son is on Keppra for medication? If he is forgetting to take his meds accidentally it a good idea to set an alarm to his medication schedule with a cellphone or a watch with an alarm. Maybe set an alarm for yourself, so you can remind him , if he took the meds.

Since he was diagnosed a year ago it will be hard and take a while for him to understand , learn and cope with his Epilepsy. Talk to the Epilepsy Foundation in your state . Find out when they they have adult group meetings. He needs to socialize with others who are experiencing Epilepsy. He can learn from the group and the staff, who are involved. It could possibly help become more confident and maybe have the interest of looking for a job, but that may take time ( interest in jobs )..

When he is ready to start looking for work, it might be a good idea to start him with a rehabilitation service agent , through your county social services. They can help him find jobs of his interests and may possibly refresh him about making job resumes.

Hope some of this help you more

posted 6 months ago
A MyEpilepsyTeam Member said:

I started medical marijuana for stress trigger, had my doctors persxribed a dissolvable anti nausea medication for home called “Ondansteron”. My mom and I were in a similar position and we have discovered that each seizure we take notes of things that happen each time and we have figured out a plan, being sick? Okay then prepare for thag with trash cans and the nasuea pill and some fluids. Get as much info from your neurologist as possible!! I wish I did that because I feel having as much info as you can about this diagnosis is great

edited, originally posted 6 months ago
A MyEpilepsyTeam Member said:

Job is very important, for his self, yes there will always be the factor that he could have a seizure. Life goes on and you need to help him learn that. My mom was my biggest help with a hug and a good kick in the butt, so jot to cuddle my disablity but remind me of my ablities in life. I had my first seizure at 16 years old and it terrified her, she knew she had to be my rock in order for me to move forward in life, 45 years later and i still hold dear to her push with love.

posted 6 months ago
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