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Xcopri

Xcopri

My neurologist is thinking of putting me on Xcopri. Has anyone tried this medication? If so, did it help you and what type of side effects did you have?

A MyEpilepsyTeam Member said:

I'm on Xcopri 300mg pm. Seems to be doing ok.

posted 4 months ago
A MyEpilepsyTeam Member said:

I took it for 1 month and had to come off of it cause it made me extremely depressed

posted 4 months ago
A MyEpilepsyTeam Member said:

I never took that RX. Good luck with finding RX for yourself. I take Keppra and Lyrica. Granmal siezure free since January 2019.THANK GOD! Levels are checked every 3 months or PRN

posted 4 months ago
A MyEpilepsyTeam Member said:

If I had applied for the job at Massachusetts General Hospital about 6 years after I had (2000), then the MGH staff would not have been able to call my doctors to find out that I had Epilepsy or anything else. They would have to wait until I revealed it to them.

And, as a professional company who trains those seeking to do the whole process from resume to acceptance of a job offer and then until after the 90 day trial period will tell you, as they did me in 2014 --after I was laid off from Massachusetts General Hospital amidst the mass layoffs in the Massachusetts hospital in September 2014 after the ICU nurses won in MA Superior Court to put a cap on the number of patients that they were caring for during a shift, and thus required the Massachusetts hospitals to clear up budget to be able to pay for more ICU nurses--I was told by my advisor that I not tell my employer (unless my epilepsy would prohibit me by law from doing the job --for example a soldier in a combat position) until after that 90 day trial period was complete that I had epilepsy. Thus, if they decided to try to find a reason to not make modifications for me to be able to do the job or fired me because they now knew that I had epilepsy, then this would allow Epilepsy Foundation (or the like) lawyers to file for discriminations charges in court. Likewise, when my supervisor was holding against me what my subconscious mind said to my co-workers while I was in a complex partial seizure (which I had to investigate and act as my own advocate after it happened) on my annual review, and I refused to sign the annual review. When the annual review conclusion was postponed, I am positive that she got an earful from the legal experts at MGH to remove that from my annual review because it would be evidence of discrimination against me because of something that occurred during a seizure that I had, because a week later when I was back in her office to complete the annual review, it was no longer listed there. And I signed my annual review.

Too often we find ourselves have to act as our own advocates, but there are some to many of those occasions that a professional advocate from the Epilepsy Foundation (or the like foundation in other nations) can do this for you.

posted 4 months ago
A MyEpilepsyTeam Member said:

Nicole, that is a very good possibilities. After all, it was not until thousands or even possibly millions of those who suffered from errors by pharmacists and doctors that lead us to need to sue and the medical insurance industry make the settlements that their analysts told them that it would be cheaper for them and the pharmaceutical billionaires if they let their puppet politicians pass laws, like they did in the the mid and late first decade of this century in the United States (no idea when or even if they needed to do this in the other nations of the world). It was also some time around this time that the patient's rights laws were passed (not sure if the new rules for the pharmacies was part of this bill). The end result is that every pill bottle that you receive and the paperwork that comes with it will identify with a picture and words (English only) what should be in that bottle. And you are told to bring it back to the pharmacy if it is not. And likewise every pharmaceutical product that is advertised on tv or radio in the US (no idea whether than can get around it on the internet because this is not unique to the USA or not) they have to provide all of the potential side effects (though not the rare ones) and point out the common high risk ones. Likewise, if there is a change in the producer of the medication that the pharmacy is receiving (and thus change in the color, shape, markings, etc.), then they have to tell you about this.
(continued in next message)

posted 4 months ago
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