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Is It Normal Practice?

Is It Normal Practice?

I'm just wondering has anyone been asked to show a doctor what happens when you have a seizure like act it out
I mean how do you act out a seizure 🤷‍♀️or is this common practice 🤔
My first neurologist appointment he asked him to show him what happens , the second one didn't but then when I was doing my eye test the optometrist asked me to show her what happens I told her I can't mimick the same actions as my seizures.
I just find it a bit insulting or am I just being way oversensitive on… read more

A MyEpilepsyTeam Member said:

No. I have been asked to describe my seizures or my sister (since me complex partial and generalized full seizures are both absence seizures) describes them and provides the key details of length, variations of the complex partials that I have had since the last appointment, etc. However, I have never been asked by any of the 3 neurologists to act one out. That is strange. I have never even heard of a neurologist asking this, but this could be a common practice that I simply didn't know is widely used.

Does he not know the form of your seizures?

Have you ever had a seizure while hooked up to an EEG?

I am assuming that you have never had one in the presence of your neurologist --because otherwise why would he need you to act one out.

I do not believe that you are being oversensitive. There is no reason for a neurologist, nevermind an eye doctor, to have you act out a seizure.

posted 6 months ago
A MyEpilepsyTeam Member said:

I recently had a grand mal seizure before Thanksgiving. Luckily my wife was there & she recorded it to show the doc. So yes, I would try if someone is available to record it.

posted 5 months ago
A MyEpilepsyTeam Member said:

My neurologist must keep my primary inform of all my medications, since keeps tracks of the ones that will conflict with others. The primary doctor holds the most important job. Always make sure the other doctors give you paperwork to relay to your primary.

posted 6 months ago
A MyEpilepsyTeam Member said:

@ Audrey he was an idiot hence why I found a second neurologist i was referring to my previous consultation a year ago and the recent one with the optometrist I haven't been to my neurologist for while as I'm waiting till see what the eye speacialist will find at my appointment and that way I can tell him everything that's going on in one appointment instead of making different appointments all the time.

posted 6 months ago
A MyEpilepsyTeam Member said:

It’s mostly impossible to act out our seizures, unless you know how to float out of your body and watch yourself. There are a small amount of people, who can and are train to have an OUT of BODY EXPERIENCE.

It’s not the best way to get answers about our seizures. If your Dr. Wants answers he/she is better off of doing a a 5-7 day trip video EEG .

edited, originally posted 6 months ago
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