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Is It Normal Practice?
A MyEpilepsyTeam Member asked a question 💭

I'm just wondering has anyone been asked to show a doctor what happens when you have a seizure like act it out
I mean how do you act out a seizure 🤷‍♀️or is this common practice 🤔
My first neurologist appointment he asked him to show him what happens , the second one didn't but then when I was doing my eye test the optometrist asked me to show her what happens I told her I can't mimick the same actions as my seizures.
I just find it a bit insulting or am I just being way oversensitive on… read more

posted January 10, 2022
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A MyEpilepsyTeam Member

No. I have been asked to describe my seizures or my sister (since me complex partial and generalized full seizures are both absence seizures) describes them and provides the key details of length, variations of the complex partials that I have had since the last appointment, etc. However, I have never been asked by any of the 3 neurologists to act one out. That is strange. I have never even heard of a neurologist asking this, but this could be a common practice that I simply didn't know is widely used.

Does he not know the form of your seizures?

Have you ever had a seizure while hooked up to an EEG?

I am assuming that you have never had one in the presence of your neurologist --because otherwise why would he need you to act one out.

I do not believe that you are being oversensitive. There is no reason for a neurologist, nevermind an eye doctor, to have you act out a seizure.

posted January 10, 2022
A MyEpilepsyTeam Member

She was trying to get answers that she needed but she was coming off super rude

posted January 10, 2022
A MyEpilepsyTeam Member

I recently had a grand mal seizure before Thanksgiving. Luckily my wife was there & she recorded it to show the doc. So yes, I would try if someone is available to record it.

posted January 28, 2022
A MyEpilepsyTeam Member

My neurologist must keep my primary inform of all my medications, since keeps tracks of the ones that will conflict with others. The primary doctor holds the most important job. Always make sure the other doctors give you paperwork to relay to your primary.

posted January 11, 2022
A MyEpilepsyTeam Member

@ Audrey he was an idiot hence why I found a second neurologist i was referring to my previous consultation a year ago and the recent one with the optometrist I haven't been to my neurologist for while as I'm waiting till see what the eye speacialist will find at my appointment and that way I can tell him everything that's going on in one appointment instead of making different appointments all the time.

posted January 11, 2022

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