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Marriage Problems Due To Epilepsy
A MyEpilepsyTeam Member asked a question πŸ’­

Hello, new here πŸ‘‹
I’m scared and alone and I think my epilepsy is destroying my marriage. Currently have TLE with focal awareness seizures. My husband can’t seem to understand the auras or seizures and the affects after. Does anyone else have this problem.

P.s husband has been spoken to by two of my doctors to explain

posted January 4, 2022
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A MyEpilepsyTeam Member

Hi Kaytee.
I'm so sorry you have to go through that on top of seizures and the side effects of them. I had the same problem with my wife when I was 1st diagnosed. People think you are lazy and just don't want to work etc. The unfortunate thing is, is that unless you have been through it, it is very difficult to understand. I actually got my Wife to start understanding by joining this site and showed her that I am not the only one out there battling. Also search for the epilepsy iceberg, it is the most true picture of what we go through. And I found when I opened up to my wife and told her how I was feeling all the time she started seeing things a little differently. I really hope this helps and hope your Husband will come around and support you in the way you need it right now.
πŸ€—

posted January 4, 2022
A MyEpilepsyTeam Member

Hi ,welcome I can really relate to this When I was diagnosed 43 years ago ,I'd known my husband for 3 years This year it's our Ruby wedding. .At first I had tonic/ clonics but they were few & far between. I worked ,was a stay at home mum for 14 years & it didn't hold up his career & all of the travelling abroad he had to do .Fast forward to 1998 until now .I have lots of confusion following my frequent back to back focal seizures.Mostly , he's v supportive but he can get frustrated with me at times eg if we go to see a play ( pre Covid!) I won't remember the plot or the outcome.Does he really think I can stop myself walking round the kitchen in circles or tapping the sofa/ wall to my left ? I wanted to write down a typically bad day & see whether he'd try the things on the list ( there would be many) eg ,wake ,look at the clock,the numbers mean nothing ,get up but can't work out how to get dressed ,make breakfast ......However I know he wouldn't read it let alone put it into practice. You're not alone It does help if you can talk about it ,we just can't( he's never been much of a talker ) Stay safe x

posted January 10, 2022

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