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Ideas For Raising Awareness Educationa Events For College Students?
A MyEpilepsyTeam Member asked a question 💭

Hey guys im a college student who i believe has been given a unique opportunity. For majority of my college life ive had challenges of people ( mainly college staff amd facualty) who trnd to be discrimitory to my epilepsy. Especially this fall, however when talking to one or two other students who have had other disabilities they have discussed how similarily they have experienced challenges dealing with their disability at school. Shortly before the end of the semester i was talking with… read more

posted December 31, 2021
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A MyEpilepsyTeam Member

When I was in school I was offered a couple of different things to help me specifically with my issues for example I was given copy paper that i could partner with a student and ask them on days when i was not able to be in class to take notes on this paper so each of us could have a copu of their notes. I also went to an epilepsy foundation convention here in san diego once and they had a lot of awareness information as well as purple bracelets for “epilepsy awareness” those are always “in”

posted December 31, 2021
A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member I think that event is a great idea! I absolutely agree that ignorance is the reason, but the challenge is getting people who do not have a family member or friend who has the particular disability or disorder to actually want to come and learn the facts and thus think before discriminating.

You might want to at least reach out to the Epilepsy Foundation (your regional one of the national one) to get some advice and maybe even some materials to use at the event.

I am sure that they can also advise you on the best approach to getting engagement by college students that stop by and the proper length of having speakers at the event and to inspire people to go to the information table in order to get additional information on specific disabilities, disorders, etc.

Good luck! And let me know if I can help with finding you any more materials that you will need. I am not a good public speaker and do not risk it because of my Epilepsy, but the good ones can stimulate interest.

It is also useful to have the facts about celebrity names (still living with Epilepsy like Danny Glover and celebrities from the past who lived with it and still achieved great things).

For example, many did not pay any attention or care to learn about Parkinson's Disease until Mohammed Ali, Pope John Paul II and Michael J Fox all came forward and told people that they had it up until their deaths or are still dealing with it now --in the case of Michael J Fox.

posted January 1, 2022
A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member, thank you for the resources i will have to look into them. Yes i do have a medical alert bracelet to try to let people know. Although im trying to plan an event that can idk help educate the rest of the studentbody in some way, and that is interesting to the average college student enough for them to want to attend. I think one of the biggest reasons people discriminate against people with disabilities, or dont involve/ include them is ignorance. Lack of understanding. Im trying to create an event for college students to attend where they can learn more about the disability ( maybe even other disabilities too) to allow opportunities for students to bond with eachother and a propper support system, including people with dissabilities makijg them feel like their apart of the community. I know just a long lecture isnt really interesting to the average college student, so im trying to create an event with some engagement between students but im horrible at coming up with ideas or types of events haha.

posted January 1, 2022 (edited)
A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member If you do not already have identification that you have Epilepsy, then you should get a ID sports band, bracelet, necklace and card to have in your wallet that will provide confirmation that you have Epilepsy. I can tell you from personal experience how valuable that this is, {because I had problems with my first trip to the ER at Massachusetts General Hospital during the summer of 2003 and later when a complex partial seizure (causing me to believe that another passenger on the commuter rail was a relative of mine and resulted in her going to security -- which I had to explain (when my seizure was over) why I had acted the way that I did--and showed them my identification as an employee of Massachusetts General Hospital to avoid being arrested for the actions of my subconscious mind during the seizure)}

And in terms of information for what you are experiencing I suggest that you start to get insight into major discriminations at a college that was proven and detailed in the book by a best selling author and former investigative reporter with Epilepsy: Kurt Alexander Eichenwald's memoir: A Mind Unraveled: A True Story of Disease, Love, and Triumph.
And other books regarding Epilepsy from the Epilepsy Foundation site
https://www.epilepsy.com/learn/professionals/re...

And reliable information (that professors and the administrators at the college will not be able to ignore or argue against) from the completely up-to-date reliable sources like the US National Library of Medicine on everything about Epilepsy, statistics on Epilepsy from the CDC and information from the Epilepsy Foundation about discrimination and advocate help for you.

https://www.ninds.nih.gov/Disorders/Patient-Car...

https://www.cdc.gov/epilepsy/data/index.html

https://www.epilepsy.com/

And listing of famous people who have (had when alive) Epilepsy
https://en.wikipedia.org/wiki/List_of_people_wi...
NOTE: This is an easy to find source, but there are other much more reliable sources that confirm this.

Let me know if you need anything more. And make sure to suggest to the administrators at the college that they should provide a reference to these facts and those about other neurological conditions and even physical conditions that are not obvious and result in discrimination.

posted January 1, 2022 (edited)

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