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Has Anyone Here Had The ECoG EEG?
A MyEpilepsyTeam Member asked a question 💭

I am set to have the ECoG Intracranial EEG(the grid on the surface of the brain), I have had the Depth Electrodes once. With my limited research it sounds that the depth electrodes were significantly easier... Just curious if someone could shine some light on what that whole process looks like and what I have to look forward too.

posted December 24, 2021
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A MyEpilepsyTeam Member

In 1998 before doing the brain surgery, I had the GRID electrodes ( electrodes place directly on the brain ) in the area of the seizures activities. They also had me hooked up to the EEG.
After about a week with the GRID and EEG , a specialist came in with a box device and hooked it up to the GRID wires. The were numbered metal studs . He would touch these with another metal piece . Each stud was a certain area of the brain. When he touched these numbered metals he would ask me to say Elementary learnings, like the ABC’s, 1,2,3,s, counting forward to 100 and backward from 100 to 1 and sing Twinkle Little Star . He’s looking for struggles in my memory trying to talk, sing saying these. Then he would know where he was in my speech, language and memory centers..

There was one part of the test, the specialist touch a stud and I think I was experiencing a little schizophrenia. I was saying one of the Elementary learnings and got distracted. I thought I heard a female’s voice outside my room, but when I looked, there was no one there.

posted December 24, 2021 (edited)
A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member, your welcome . It’s been over 2 Decades since I’ve had any severe seizure.

Merry Christmas to you too.

posted December 25, 2021 (edited)
A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member, the box I was trying to describe with the numbered Studs also sent electric current , when touched it with the metal piece in his hand.

For your questions. The Mapping test (GRID ) went well. I surprised the nurse and staff. The EEG staff were we’re getting a little frustrated with my seizures later in the week. . They wanted big seizures and I was having small ones. I was even down to the nitty gritty with meds. The Dr came to to talk about alternatives, to help make me have a big seizure. Did I want alcohol, was there a food that triggers my seizures and ect. I new regular pop triggers my seizures, but I can drink diet pop. I ask for Dr.Pepper. Sure enough a can and a 1/2 made me have a large convulsion seizure.

The Brain Surgery went well. I have no clue how long I was in ICU . But when I was up and awake in the Seizures Unit, I was fine. They started getting me back on my meds . I surprised the nurse and staff. They would come and check on me and ask if I have a headache and what the number rating is ( 1 minimal pain 10 sever pain ). I usually rated my headaches at a 4 . A few time it was minimal. They never expected that. The success of the surgery may not of made me seizure free, but it did reduce my seizures frequency. I have mild and moderate seizures. Before I had mild moderate and severe seizures.

posted December 24, 2021
A MyEpilepsyTeam Member

Me 5 days

posted March 11, 2023
A MyEpilepsyTeam Member

Congrats on one year anniversary!

posted March 3, 2023

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