I am on it, have been for about 6 months. So I am on the 200mg. I don't remember having the problems you are having. So sorry for what you're going through. Are you taking anything else? I am also on Briviact.
If it is causing you that much pain, I would stop taking it. That's crazy that your Dr is keeping you on it.
I hope it gets better.

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I went a year seizure free at the beginning. I am 58 and had my very first seizure 5 years ago. Now I’m have auras and focal seizures and grand mals. If I have one in a day I’m gonna have a second one. I’ve been known to have 3 in one day. Where’s all the medications and research?

Exactly! I will endure the side effects of the medications if it means that I can reach a long term seizure free state, especially one that is in years after the month+ long seizure free state that I recently experienced. It was an amazing experience to not even having any auras triggered even with all of the extra stress of the season. And it took the focus on "low grade tumor in the brain" and "EEG with probes directly on the brain" and "brain surgery" to push me stress level to trigger the aura and seizure to break this seizure free state. However, even with this, it is nothing like the amount of auras and seizures that would have been triggered in the past if this conversation had taken place years ago. After getting laid off from Massachusetts General Hospital Treadwell Library, I had an interview in another department where my computer skills and knowledge could be used (but they dumped a lot more advanced work on this position than the pay grade that it was), and after that initial interview and thinking about the follow up interview, I had a series of seizures that told me that this would be too much stress on me. And I withdrew from contention for this job. Because of the loss of so much of my technical knowledge from my years in college in Electrical Engineering Technology and then 10 years later (trying to go back and get the degree in Computer Science -- actually Software Engineering with the way they have it set up, considering physics and the like that comes with engineering and which would not be required for computer science degree) is lost somewhere deep in memory and there was no way being on Carbamazepine that I was going to recall that. And the resulting weather that winter would have meant I would have lost any job that I had gotten in Boston because it made commuter rail travel to Boston a major challenge with even frequent shutting down of the schedule and major delays when it was not shut down.

If it stops the seizures I’ll take it. There is nothing worse than waking up from seizures