What Are Your Auras? | MyEpilepsyTeam

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What Are Your Auras?
A MyEpilepsyTeam Member asked a question đź’­

I've heard of people with epilepsy having auras where they experience a weird smell or taste. My aura is visualizing myself dying in horrific accidents that seem so real like I'm in the moment. Just last week I was washing dishes and as I'm looking down I just see myself like I'm in a giant current taking me under and there's no way or anybody to help me. My neurologist referred to this as bouts of dread and these are my auras. Does anyone else have this type of auras? They're feel so real and… read more

posted October 30, 2021
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A MyEpilepsyTeam Member

Mine were scared feelings. If I started feeling scared for no reason, I would start talking or singing to hopefully prevent blacking out. It worked most of the time.

posted October 30, 2021
A MyEpilepsyTeam Member

Yes. Many people just think I'm trying to start problems and don't believe me about the noises and how they bother me. My memory loss seems to be getting worse too. I was just told by my supervisor at work a few weeks ago that I need to quit using my memory loss as an excuse. They may get frustrated with me because I have these issues but they are far worse for me then they are for them.

posted October 31, 2021
A MyEpilepsyTeam Member

Definitely stress for me too, & also if my misophonia is really “irritated” by someone/ thing. 🤫
Does yours ever trigger aura or seizure?

posted October 30, 2021
A MyEpilepsyTeam Member

The meds I take control the seizures unless I'm under a lot of stress. If I miss a dose I have them again right away. I have complex partial seizures.

posted October 30, 2021
A MyEpilepsyTeam Member

I get feelings of dread/doom, smell of smoke (like there’s something on fire) that’s so very real to me I make people look for what’s burning - even though part of my brain knows it’s probably an aura, and taste metal like the smell of a penny if I put one in my mouth… they are also called focal aware seizures btw. Usually mine become focal unaware complex partials & I end up unconscious. Mine are refractory (or intractable). Are yours controlled by medicine?

posted October 30, 2021

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