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Nobody Believes Me

Nobody Believes Me

What do I do if neurology and my family and local community medical services doesn't believe me when I say that I have epileptic fits
( bad timing on my part)that was when my medication was at a lower dose I had 3 grad mal Unwitnessed didn't call after , now that they've raised my doses I definitely had less a couple once in awhile but like there's no evidence there's no medical records there's no witnesses there's a record on my phone from my seizure app but what what happens if nobody… read more

A MyEpilepsyTeam Member said:

If your neurologist was smart he/she would order a in hospital 5+7 day EEG. They Would reduce your meds, to increase chances of seizures. If your Dr. Is not that smart, you better find another one . A Epileptologist,if possible..

A stupid thing you could do, is reduce your meds when your going to be around your family and friends.

posted 10 months ago
A MyEpilepsyTeam Member said:

Maybe try finding someone who can stay with you 24/7 for a while. Eventually they are going to see you have a seizure.

posted 10 months ago
A MyEpilepsyTeam Member said:

the same thing happens to me. they think its pseudoseizures. hard to find a neurologist who believes me

posted 9 months ago
A MyEpilepsyTeam Member said:

Same here. If nobody says anything,I keep my mouth shut and go to sleep, wherever it might be

posted 10 months ago
A MyEpilepsyTeam Member said:

when i was a kid... i thought i had add/adhd undiagnosed until the 1st grand mal. and we (mom and i) hired and fired thousands of drs. more like a lot of hundreds. i lost count on 100... and i was just a kid. am 36 (in a couple of weeks). my advice... research about your seizures (now thy enemy)... trust your gut feeling... and find the right dr(s).
if you want... tell um about my youtube channel. i talk about seizure stuff. the link is called 'seizure type part 2 (of 3) - focal onset (partials)'. https://www.youtube.com/watch?v=JV88yyMO3o8&amp...

posted 10 months ago
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