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Fluorescent lighting makes me cringe.
Honestly all light bothers me, I've just came to terms darker the better.
Hi I realized I'm super fidgety to the point where my fiances mom doesn't sit next to me because it makes her sick and I don5 know why I do it, I got yelled at work because I had to constantly be using my hands or shaking my legs. I was wondering if this could be connected to epilepsy because I've been like this forever since I was diagnosed and don't realize I do it. I don't know why I do it.
It’s weird when you mention that. My opinion it’s not due to epilepsy. Habits are common. My friend picks his fingers and shakes his leg. My sister when she talks touches her nose a lot. My sister… read more
Has anyone with epilepsy taken up fishing and found it relaxing? If anyone goes fishing what happens when you have a seizure standing in the river? Is it really safe?
When I use to fish I fish at a river damn, near where I use to live
Yes . I have it myself.. I’ve been on many different AED meds and non of them were able to control me seizure 100% . That’s what Refractory Epilepsy is.
I’ve been through a few different procedures… read more
As epileptic people must have to use AEDs possibly whole life, I am wondering that what kind of side effects one can expect and precautions to avoid these.
Actually as a 55 year old, i know better. They dont usually tell us everything. Long term; they affect absorption of vitamins and minerals. Add yourself. Digestive system gets whacky…You need to… read more
Recently I have started having hot flashes and I am pretty sure I am starting menopause . I am under an immense amount of stress (my son and my father were diagnosed with cancer last year, my son is now in remission. My father is not doing well). But I am wondering if anyone else noticed a worsening of seizures due to menopause? I went like three days of having pretty consistent hot flashes and tiny seizures
Any positive information on Epidiolex as the only meds? Currently on Zonagran. I'm reading and so many bad side effects. We asked our doctor to switch
Had a abnormal 24 EEG 1 month ago and in 2019,but not the cleavland clinic wants a 3 day EEG, I wish the shared data more . We have a functional doctor appointment and generics appointment. I'm my son's voice until he finds it and if takes fighting for his rights and researching like a scientist, then must be done.
@A MyEpilepsyTeam Member
I don’t have seizures very often either. I usually just have 1 or 2 a month. However, that still has had a big side effect on me ever since the month I had my first one.… read more
Currently I am on Levetiracetam 1500 mg twice a day, Carbamazepine 250 mg twice a day and lemitrigone 75 mg twice a day. Out of these medicines which one is most dangerous for memory, as I am losing memory quite visibly and my worry is not get dementia like situation in old age, any thoughts, please share.
Thanks:
Because it is an article on too broad a subject (all of the anticonvulsants) rather than one that focuses on one of the older anticonvulsants to draw its information from. The point I was making by… read more
I used to be worried about longer seizure free duration, although longer duration is considered stable, but as I am medication resistant analysed by my neurologist, please share thoughts. Thanks
I have achieved the 3rd which is 1 month. I have previously achieved having no seizures for three months so my goal is to not have a seizure for four months or longer
Stress and hormonal. When I was getting my monthly cycles, I would have seizures about a week before my cycle would start