Gotcha! It has helped me but not so much in a clinical way. I had a left temporal lobectomy in 2002 that basically took care of what my medication alone could not. As long as I stay on my meds I don’t have seizures…that can be seen anyhow. Of course I didn’t know that I was having these “silent” seizures until I had the RNS surgery in 2018.

What I have noticed that really stands out is that I have had breakthrough tonic-clonic seizures about every 5-6 years since surgery. Since the RNS was implanted, I have not had a tonic-clonic seizure.

The RNS also keeps logs of what it does between uploads. That data, as well as other information, can be viewed by your doctor once it has been uploaded to the NeuroPace’s PDMS (Patient Data Management System). The data can be seen in EEG images, as well as in a report called an interrogation report.

My doctor utilizes the EEG graphs but I use the interrogation reports to match the dates/times up with my personal logs to better understand how what I do may impact seizure activity. I can request from NeuroPace. It needed approval from my doctor for NeuroPace to release the records to me but that has been provided and now the reports are provided to me in a secure cloud drive.

Since the RNS was implanted in 2018, I have had over 220,000 spikes, as well as some seizures that I actually don’t feel the seizure itself but just feel like I had been hit by a train. I had been experiencing that for years but it was not until I had the RNS implanted and began requesting the interrogation reports that I could really make sense of the days I felt horrible even though I had not had a clinical seizure.

I would encourage anyone that is considering RNS implant to check it out.

Please feel free to ask me if you have any questions. I will be happy to answer if I have experience.

Hope you’re having a good day.

Good morning 🌄 have a awesome Saturday. Blessings 🙏

Thanks for all the info!! I also had a left temporal lobectomy in 2016 and went about 3 years without seizures. But they’ve returned and can’t be controlled, so looks like this is the next step. I appreciate it so I’ll be adding you to my team! Have a good night

Thanks in advance! Has it helped??

I have a RNS. What is TIA?…I don’t recognize that acronym