Pretty Please Tell Me What Everyone Does To Stop Having These Seizures?? | MyEpilepsyTeam

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Pretty Please Tell Me What Everyone Does To Stop Having These Seizures??
A MyEpilepsyTeam Member asked a question 💭

I just cant take it anymore!!

posted September 7, 2021
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A MyEpilepsyTeam Member

There is no guarantee of what you may do will fully stop your seizures. Now if you want to try and reduce the chances , that I can help with.

First there the basic triggers of seizures , like…..
Not getting enough sleep
Taking the meds on schedule
Anxiety and stress,Depression, sad, anger, frustration and ect.

So a few ideas to do is relax, puzzles, enjoy nature outside, listen to music, read, and maybe just shut everything off for awhile. Anything that can help reduce your seizures.

Then there are the many triggers that deal with your body’s tolerance. That you would have to discover yourself. Can you tolerate………
The hot, cold, humid type weather
The Environment, like low valleys, leveled plains, high mountains, high in the sky( flying) near ocean shores and on the lake or ocean ( boating )

Sun , artificial , strobe, and LED Lights
Sensitive to certain noises and frequencies
Smells
high impact movies and shows

There are is probably still a bunch of triggers that I haven’t mentioned above.
If any way possible, try to find a way to protect yourself from those, to reduce chances of seizures.

These are just some of the many things that can trigger our seizures. A lot of times the seizures can just come out of the blue. You could of done everything right, for the day. Then out of nowhere a seizure hits.

I hope this helped you out one way or another.

posted September 7, 2021 (edited)
A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member The most important things that you can do to help reduce the amount of seizures and even perhaps reach a seizure free state are the following:
1. Make sure to never forget to take your medications
2. Reduce your stress levels deflecting off any areas of stress that you cannot directly do anything to change (besides praying) and finding fun hobbies and anything else to take your mind off worrying about when you will have the next seizure.
3. Get at least 6 hours of sleep each night, or at least get an average of 6 hours of sleep per night.
4. Do what you need to do to avoid depression or at least ensure that any depression is for extremely short time periods (hours instead of days or weeks).
5. Remain positive that you can reach a seizure free state and then remain seizure free for the rest of your life (or until the cure for Epilepsy is found).

If you can do all of these things, then it will assist the medication to help you to reach the seizure free state and stay there.

posted September 7, 2021
A MyEpilepsyTeam Member

And not only has your success and lack of complaining been good for you, but it also brought a lot of hope to your friends here!🙂

posted September 15, 2021
A MyEpilepsyTeam Member

Thank you @A MyEpilepsyTeam Member . The brain surgery was worth it, because it reduced my my seizure frequency. There are only 2 couple of other types of treatment , that I can try. My Epileptologist and I agree that there is much we can do w/ meds.

I also keep telling myself, that I could of had more sever type of Epilepsy. I really can’t complain a whole lot .

posted September 15, 2021
A MyEpilepsyTeam Member

I've had brain surgery (removal), still take meds, and have a VNS. I haven't a grand mal in years.

posted September 10, 2021

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