I have never gotten an answer from a neurologist when I describe some of the more complex versions of my seizures like one my mother watched (on a day at home after a day at work in a factory in which I helped produce the rubber handle for golf clubs) in which she described that I was moving about like I was doing all of the stations in the area that is usually done by 2 - 4 people in the process to create the final product (the rubber golf club handle including the mark for the various… read more
@A MyEpilepsyTeam Member Stress is what causes my seizures. I have been doing so much more positive things to keep my stress way low and make my past go away. Like for awhile now I go out for coffee and work on workbooks of the bible like with Exudes now. Doing stuff like this helps me very much.
I have the complex partial seizures and yeah I go completely unconscious and do things without even knowing what I'm doing when my daughter was with me she took a video of me after I told her too
John, I contacted them when I was by myself, & told them this alarm had rung the 5 people 5 times!! Oh that shouldn’t happen the guy said. All I said was the female ambulance lady said very clearly that the Sydney ambulance are here with her now & she is fine as she slipped over which set the alarm off!!
Apollogy accepted.
Bear in mind though.
Please be understanding.?
Ok.
Imagine
Single mom : 3 types epilepsy
1st daughter : 1 type epilepsy
2nd daughter : 1 type epilepsy
Finance : category 9 paraplegic.
Live on a farm miles away from anything and we cannot drive..
We don't pity ourselves. We motivate others for we cannot put ourselves in their shoes. Kevin_D does get it. If he makes it bigger it is how it is for him. A mountain that at least he is trying to cross meaning already he has guts to try.
You do not understand still then. You want to write formal letters and this guy has challenges that you made small and belittled.
I don't like bullies and if you cannot understand him then regardless of your circumstances you still don't get it.
If you truly did then you won't make someone else's challenges look small at all no matter the circumstances surrounding it. And its also not what you say but how you say it so he got double the punch when he needed assurances and just guidance if needed.
Get on internet and search and find a closer SUPPORT group, as he mentioned from the beginning, if you are as good as you make it seem.
That is how you help someone.
Actions speaks louder than words especially if from the heart in a good place.
Enjoy your day.
Kevin_D We are so with you.
Same situations to the dot.
So those of us who understand you will support you. We are there to even listen.
We are actually quite a few sitting in situations like yours.
Talk also help so we are there for you seeing arguing already show also that many still don't get the real epilepsy challenges.
Just let it go. The arguments that gets created is useless. They say they want to help then argue if we voice challenges.They don't get it. If they truly had it they would get it and not judge or argue or literally get verbally nasty as I've seen right now.
He was just stirring with the golden spoon and stand back.
You cannot know unless you walk a mile in another's shoes.....as the saying goes.
Good luck for you truly. We all with true epilepsy get you and the stress going with it.