My 9 year old son was recently diagnosed with epilepsy. He’s dealt with migraines with aura since he was 4 and been on daily migraine meds since then. They have never worked for him. He has gotten an aura/migraine every 10 days to two weeks. He had his first seizure at school last March. His neurologist gave us rescue meds and we hoped it was a one time thing. Unfortunately in August he had his second seizure that lasted so long we had to call 911.
My question is
Could his… read more
@A MyEpilepsyTeam Member
I do and my headaches can last for up to 72 hours! I started on Levetiracetam (Keppra) and so far my migraines have disappeared along with the seizures. Only time will tell for sure however I have felt that my migraines may be seizures as well (at least most of them.) Part of why I think this is over the years my seizures have changed and when I look at my migraine journal the symptoms I was experiencing are almost identical to what happens at the beginning of the seizures (aura?) I experience now (focal aware to focal impaired to secondary generalized tonic clonic). I didn’t used to think I was having seizures because I wasn’t having motor movements, jerks or tonic clonic seizures like I do now. I didn’t understand about focal aware seizures. I think my migraines are definitely connected to the focal aware-aura description. This has been my experience and I hope it can help. I am glad I have my notes or else I would not remember what I was experiencing with migraines to connect the dots. Xoxo
For children they have a higher chance they will grow out of the seizures. Not saying it happens to everyone but a good chance he will stop having them.
I agree. Are there any active studies being done that we can participate which look at individual cases for solutions?
I talk to *neurologists. Not just one, because I have seen that it can be a guessing game for them. Even with all the tests, MRIs, EEG etc
RedMaisey Your advice to Pam was terrific. Just knowing one med will help both migraines & seizures is so important. As you said who ever heard of this before? So nice to see positive info bout meds, how they helped you.& will help others.
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